Topics

Family and transplantation
Dear expert team, my husband is just before coming on the lung transplanatation list. We have 2 children (2 and 6 years old). WE have been told, that he cannot come home after transplantation and cannot have contact to his children. I doubt this. What is your opinion? Best regards, C. M.
28.07.2017
Lung transplantation / mycobacteria
My niece has CF, now the mycobacterium has been found ... according to the physicians she will get a lung transplantation...however the hospital is refusing to do it because of the mycobakterium. My question, which hospital would take a CF patient with mycobakteria and also do the ...
17.07.2017
Treatment recommendation for persistent Pseudomonas/Staphlococci infection
Dear team, I have received a lung transplantation (2010) and suffer from CF. For 6 months, my lung function decreases rapidly and since then, it is constantly low. Antibody tests, bronchoscopy, CT and x-ray had already been done. Only in the bronchoscopy, Pseudomonas and Staphylococci could be ...
19.05.2017
Disease post transplantation
Hello, In a transplant patient, the transplanted tissue is healthy but it remains the genetic anomaly, so can the disease again damage his "new" lungs in the long term? Thank you
17.03.2017
Mycobacterium abscessus towards double lung transplantation
Dear expert team, a CF patient wrote recently to me, that she could not get a lung transplant because of a colonization with Mycobacterium abscessus with recurrent infections (with sporadic finding of S. maltophilia + recently Pseudallescheria Boydii). I do not find any literature about this. A ...
16.04.2016
Fracture of the humerus with osteoporosis (lung transplanted)
[11.01.16 - addendum: on request we got the information: "Dear expert team, I am 51 years old and suffer from CF. Many tanks for the answer to my question. Regards, R. ] Dear expert team, 12 weeks ago, I got an subcapital fracture of the humerus. Now the radiologist stated, that I have a ...
07.02.2016
bronchial stent
This morning, I saw on TV that it is possible to put a bronchial stent which allows to increase respiratory function and avoid oxygen therapy for some respiratory diseases. I have oxygen and I ask for the possibility of this treatment in cystic fibrosis.
01.02.2016
Production of mucus after transplantation
I, male, 50-years-old, have undergone sucessfully a double-lung transplantation in October 2013 with the diagnosis of COPD of unclear origin. Both sweat tests that have been performed 25 years ago, had been positive, the genetic investigation of the blood on the 15 most important CF-mutations ...
11.12.2015
Transplantation
Hello, if a CF patient undergoes lung transplantation, will the new lung also suffer from more and more mucus? Therefore, will the CF damange the new lung the same way as the former lung? Can one transplant the pancreas, so that the new organ secretes enzymes in the gut? Thus, could one cure ...
12.06.2015
lung and liver transplantation for cystic fibrosis
Hello, I have been lung and liver transplanted in 2009 for cystic fibrosis. I want to know what is bronchitis and bronchiolitis. Is is serious to have pus in lung which is removed by bronchoscopy? What’s happening if there is rejection? Thank you for your answer.
07.06.2015
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