Laëtitia Gueganton

Education

  • Postgraduate degree in Cultural Studies of Brittany and Celtic Lands, University of Western Brittany, Brest -  1996 : "The psychological experience of parents of cystic fibrosis children: their adaptation and influences from within and without the family”
  • Doctoral degree in Psychology, University of Western Brittany, Brest - 2001 : "Traditional hospitalisation versus home care: analysis of parental choice and the psychological impact on families with cystic fibrosis children: the example of intravenous antibiotic therapy”

Professional experience

  • Research Project Manager, Centre de Perharidy, Roscoff (2001-2004): “Evaluation of announcement procedures, their psychological impact and parents’ adaptation following diagnosis of cystic fibrosis”
  • Coordinator and monitoring of clinical trials (2009-)
  • Assistant Coordinator for the Cystic Fibrosis Network in Western France (Réseau Muco Ouest) since 31 January 2004 as well as for the of the French CF Expertise Center of Nantes University Hospitals since 1 January 2007
    • Administrative and financial tasks
    • Participation in project ans research management
    • Member of the technic committee of the French CF Registry
    • Referral person for the Communication cluster of the National Platform for Clinical Research
    • Co-Investigator of the Reference Center for the European Cystic Fibrosis Society - Clinical Trial Network (CTN)
    • Webmaster for the CF Expertise Center of Nantes

Membership

  • Member of the Member of the French CF Association (Vaincre la Mucoviscidose): since 2000
  • Member of the Quality of Life Committee of the French Cystic Fibrosis Association (Vaincre la Mucoviscidose): since 2007 until 2011
  • Member of the regular board of the sub-regional delegation of the French Cystic Fibrosis Association (Vaincre la Mucoviscidose): since 2008
  • Member of the French CF Society: since 2007
  • Member of the European Cystic Fibrosis Society (ECFS): since 2006
10.02.2011