Please note: While some information will still be current in a year, other information may already be out of date in three months time. If you are in any doubt, please feel free to ask.


What is the life expectancy of a baby diagnosed with CF in Canada?
Dear Questioner
Many thanks for your question. There is some information on the Canadian Cystic Fibrosis Patient Data Registry Report (2010) which might be of interest to you. It can be found at the following link:

The Canadian registry includes data on the majority of Canadians with CF which gives a comprehensive picture of the CF population in Canada. The report has used information gathered from patient with CF seen by clinics in Canada to predict the median age of survival for Canadians with CF which is currently estimated to be 48.1 years of age. You can see from the graphs presented in this report that at any given age, the survival is higher for those born more recently, suggesting that over time there have been advances in CF care that are keeping people healthier. The slope of each line is different. As the birth cohorts become more recent, the slope of the line is more gradual. This means that the survival for someone born in 1975 is not the same for someone born in 2005.

Whilst it is difficult to give an estimate of life expectancy for a baby born today, you can see that trends have been improving and could continue to improve.

Best wishes
Lisa Kent, Belfast
The answer is edited by: PhD Lisa Kent