Respiratory function - thoracic distension
Here is my question : I recently realized pulmonary function tests which showed increased residual volume and total lung capacity (RV=180% et TLC= 132%). I have never smoked but have had quite frequently a dry cough without expectoration for many years. Could you help me understand these ...
Perfume (fragance) diffusers
Hello, Do you think that synthetic perfume (fragance) diffusers may be dangerous for lungs? Can we use them when our 2 years old girl is in the same location? Best regards. Thanks.
Lung function
How to improve my child's lung functions (from 55% at present) and slow the further damage?
Lung cilia
Hello Results of Brice Marcet (CNRS [National Center for scientific research], Sophia-Antipolis, France) concerning the identification of molecules that promote cilial growth of epithelial cells are good news but I imagine that we should be cautious before being too exited. However, could you ...
We just discovered my 12 years old CF son had Scedosporium. His FEV1 went down to 80%. Is there a treatment against this fungus to help recover his FEV1, that was always 100%? I am worried.
Liquid sputum in the morning
Hello, I am 39 yr old CF patient with F508 del mutation. I am chronically colonized with P. aeruginosa and I have few exacerbations that I can usually handle properly. Since February (and my last antibiotic course), my sputum has became very liquid in the morning, which is disturbing. I have ...
SPLUNC1 protein
Hello Could you give some information concerning SPLUNC1 and its effects in cystic fibrosis? Do we know well this protein or is it only the beginning of the research? Are there studies planned ? Thanks for your answer.
Hello, I am 37 years old and have CF. I am currently taking azithromycin again. Are there any long-term studies on the effects of this drug? Improvements in lung function, etc.? Many thanks.
Looking for a further spasmolytic I do not know by now
Dear expert team, Before each colistin inhalation (I am resistant to other antibiotics by now), I am using currently the following drugs in a 4-day alternation: Atrovent® (ipratropium bromide) alternating with Berotec N® (formoterol) aerosol and Sultanol® (salbutamol) aerosol. In the mornings ...
Very rare mutation
Hello, I appeal to you because I can not find on the internet the answer to my question: I was diagnosed with CF at the age of 5 months with Pseudomonas aeruginosa colonization from the beginning. I wanted to know if it was serious knowing that today I am 19 years old? And my mutation is the ...
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