LVRC (Lung Volume Reduction Coil)
Hello, I (45, male) have an emphysema stage III and I would like to know if LVRC (Lung Volume Reduction Coil) could be a future method to increase FEV1 a bit… Thank you very much.
Gain or damage by CT scan
What is the indication to do a CT scan in a 2-year old child with CF? What can we decide from that?
Thoracic hyperinflation
Hello, The last thoracic X-ray of my 3.5 years-old daughter revealed a thoracic hyperinflation. What does that exactly means? Is it temporary or permanent? My physiotherapist told us that a belt could help her. How considering the follow-up when such a hyperinflation is observed at a such young ...
Blueish tongue
Should one be worried when one repeatedly has blueish discoloration of the tongue? Is this a sign of shortage of oxygen? Can it occur in young children? Is it part of CF?
Why do people with CF need a CT or MRI scan? What are the pro’s and con’s. Especially with regards to children.
How to react to an inexplicable decline in lung function?
Dear expert team, I am 24 years old and have CF. As a basic therapy, I have been inhaling colistin, salbutamol, Atrovent® (ipratropium bromide), saline solution 5.85% and Viani mite® (fluticasone/salmeterol) long-term. In addition, I take azithomycin orally, 3x500mg per week. My diabetes is ...
Physiotherapy and pneumothorax
Can you practice physiotherapy sessions in case of a pneumothorax drained? If so, can it have adverse effects (make the drain bubble)?
In which situations can anti-inflammatory drugs (steroidal or non-steroidal) be used to treat cystic fibrosis (CF)?
Lung Clearance Index-European location
Dear questioner, First of all thank you for your prompt answer. I am interested in taking the Lung Clearance Index test in a European country where we can comunicate in english/french and where it isn’t so expensive. I am thinking first of Vienna or Spain (if we can comunicate in english) or ...
Pulmonary arterial hypertension
Hello, What are the consequences of pulmonary arterial hypertension (PAH) in patients with cystic fibrosis? When does it occur? Is there an increased risk of mortality? Otherwise, are sports to be banned?
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