Topics

FEV1
Hello, I am a 46-year-old CF woman and my FEV1 has decreased after a pneumonia, that has been treated for 4 weeks with an i.v. cure because of Pseudomonas, about half of the value from 52% to 28% and I still need oxygen, two months after discharge from the hospital, in spite of the fact the ...
17.02.2014
Lung after DLTX (double-lung transplantation)
Dear expert team, in case a CF patient has had a lung transplantation, is and stays the lung "free of CF" then? That means: does it not congest with mucus anymore? Or does one have to go on with physiotherapy and inhale mucolytic drugs? Many thanks!
17.02.2014
CT of the lung appropriate?
Hello, I am 35 years old and in the frame of an genetic investigation it came out that I am a carrier of CF. When I was a baby, I had a strong pneumonia. I suffer from allergic asthma and have slight clubbing of the fingers. A recently performed sweat test had a result of 42 (control area). In ...
11.02.2014
Strong cough at night
Hello, I have a 6-year-old daughter with CF and she is coughing for nearly 2 months, at day time less and at night time very much. What can I do for relief? She is taking antibiotics for the whole year with only few pauses, thus steadily. From the cough blocker noscapin she gets stomach ache. ...
03.02.2014
Cayston®, hemoptysis?
My son, 33, is told to inhale Cayston® (aztreonam) and has worries after reading the drug leaflet. He has had 3 times hemoptysis with years intervals inbetween, 2 times he had to be admitted to hospital due to this, whereby it was not necessary to intervene in the end. It is not written in the ...
03.02.2014
Bronchial congestion
Hello, My 18-months old CF boy has presented a rhinitis last week (this was a loose cough with a clear runny nose). Our physiotherapist said that supplementary sessions of physiotherapy were not necessary because the bronchi were symptom-free. On the other hand the physiotherapist of my friend, ...
20.01.2014
Query
I would like your opinion about my baby. He is 9 months old and weighs 9.6 kg and is 71 cm tall. Since a month ago he has wet cough. My pediatrician said it was just a viral infection. He administered mucosolvan® (substance: ambroxol to losen the mucus) and spiropent® (substance: clenbuterol, a ...
30.12.2013
smoking passively
Dear questioner, We have an 8-year-old son with CF. We are both non-smokers. But my father lives since recent time with a smoking woman. Because he takes care a lot of our son, I worry because every time he comes back from my father, our son smells like cigarette smoke allover. We have spoken ...
17.12.2013
Bronchitol® and NaCl 5.85%
Dear expert team, I (26, CF, FEV1 about 65%) inhale for years a lot with NaCl 5.85% (20 minutes in the morning, 30 minutes in the afternoon and 30 minutes in the evening) as I can cough up my suptum very well with this and I breathe easier after this. For a few months, I inhale after that in the ...
11.12.2013
Milk and milk derivatives
Hello, for a child with high sputum production, is it better to avoid or to forbid cow's milk and its derivatives (cheese - yogurt). I've heard that it promotes the production of mucus. Thank you for your reply
09.12.2013
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