Rivers & CF
How high are the risks & what are precautions we should take with a toddler cfer and playing in a river? Specifically the Guadalupe/Comal? High vs low?
Living in Athens with CF Recommended ?
I have an 11 year old daughter with CF and we live in Abu Dhabi, UAE, but we may come to live in Athens, I am worried about the air pollution, we will be living in the hills outside Athens. Also Gala has just started to take Ivacaftor as she has the G551 mutation, is this going to be available ...
Borderline sweat test results/genetic testing
Hello, I am a woman of English descent living in Finland and my family has a history of cystic fibrosis. I have a history of nasal polyps, recurrent pancreatitis, recurrent sinus infections and intestinal ileus. I also have a fatty liver and pancreas divisum. My gallbladder was removed because of ...
CF contact with chest infected person
I wouild like to know if a CF carrier with lung infection can safely spend two weeks in a camping tent in a hot climate with a CF child. Some of the lung infection symptoms we know about are persistent cough, short of breath, weight loss, overall weakness and a past history of pneumonia and ...
Move to France from UK with 2 and 1/2 yr old with CF
My son has CF, with two copies of delta508. He has excellent health care in the UK and remains well, despite culturing pseudomona 3 times in his first 18 months. Now my husband has had a good job offer in the South of France and wants us all to go. What would our position be with regard to ...
Test question for keyword list-please ignore
This is a test question, please just ignore it
pools with demineralised saltwater
Hi we are going to an resort in turkey and they advertise that they are environmentally correct. and dont use drinking water in their pools. the water in their pools are sea water which is deminaralised (a bit of the salt is removed). its a newly restored hotel 4 star my concern is the ...
CF Centre in Mallorca
Is there a specialised CF centre for children in Mallorca?
hospitals in EU
Hello there. I would like to become a guide abroad - but I can't seem to find a list of the hospitals in e.g Spain... Any help?
Nebulizer suppliers
not sure this went through the first time so... We are in France to visit my mother in law's family. We burned the motor out on my son's Pari Ultra II nebulizer even using an adapter. Does anyone know where we could find an e-flow or other battery operated nebulizer or some that would be ...