Innovative allied health roles in management of children & adolsencents with CF
I am seeking information or examples of innovative allied health services or roles from health professionals working in cystic fibrosis (children 0-18 years including transition to adult services). In particular, I am interested in information or examples about allied health professionals working ...
Equipment availability for patients
Is there funding available through government / hospital or are the devices self funded. 2 If the devices are funded do the patients have to meet any set requirement/ criteria ie pensioner, health care card 3. If funded are they able to access more than one device 4. Is it only on dr or ...
Inhaled antibiotics available in Germany
My daughter will be studying in Germany for 6 months this spring/summer and is interested in what inhaled antibiotics are available and approved for use in CF there. Could someone tell us?
CF Twin babies
Hi, I have a case of CF in the family. These twin girls were diagnosed right after birth, and have had a rough first 6 months. The parents are a bit disappointed at the very sparse specialized care available in the country and are starting to consider getting the girls to some other country with ...
family planning
i am a female with cf and my husband is a carrier of the cf gene. Could you please advise me if we are entitled to one attempt of IVF(PGD) under the NHS. I have read about another couple with a different heriditary condition receiving PGD under the NHS. Thank you