Topics

Rivers & CF
How high are the risks & what are precautions we should take with a toddler cfer and playing in a river? Specifically the Guadalupe/Comal? High vs low?
17.03.2014
Duct heating system?
Does anyone know if this type of heating system is a threat to those with C.F.?
11.03.2014
hot tubs, jacuzzi, spa baths
Could I get recent publications/research on the use of hot tubs etc for cf teenagers please?
10.03.2014
hot tubs, jacuzzi, spa baths
We need to explain to friends why our grandsons (11 and 14) are not allowed to go into hot tubs, jacuzzis, spa baths etc. Please could you recommend research documents (if any) or any written material to help us put this danger to our grandsons over clearly to anyone who may have care for ...
18.03.2014
Swimming
My son (aged 7) is due to start swimming with school in January. The pool used by the school is not chlorinated but the water is cleaned by ultra-violet light. Would this pose any infection risk for someone with CF? Thank you.
31.03.2014
FIBROSIS QUISTICA
TEACHER. MY GRANDDAUGHTER OF YW 1282X F508, heterozygous 16 MONTHS SHE IS WELL Clinically, BUT HIS FIRST GAVE EXUDATE PSEUDOMONAS. INTRAVENOUS TREATMENT IS IN. THE MUTATION??
22.11.2013
Pseudomonas aeruginosa
Is there a danger of getting Pseudomonas aeruginosa when treated staphylococcus aureus?
02.12.2013
G542x/5t and pseudomonas
Good day, Can you please provide me the symptoms that someone with the above genes can have? My 7 year old son recently was diagnosed with PA and is waiting for the results for the second sputum test. I was told that he might have more than usual sinus infections and the possibility of the ...
21.06.2013
G542X /5t and PA
My 7 year old son was diagnosed with carrying g542x and 5t. This diagnoses was made when he was 6 years old after experiencing syringeal akrokeratoderma in his hands (exesive wrinkling of the palms) He has a sweat test of 39 and then 40 The wrinkling of the hands only lasted for about 3 months. ...
23.05.2013
Pseudomonas in sputum on child with CF
My nephew who is 1 years old has been diagnosed twice with having pseudomonas in his sputum and has been put on medication to help with the infection. His parents have 2 cats and a few fish in a small tank in their home. My brother and sister in law are very good about keeping the house clean and ...
21.06.2013
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