Topics

Do CF patients run any risk when breeding wild birds?
Hello! I am affected by Cystic Fibrosis. Since the beginning of this year I am on pension because of inability to work. I am thinking about taking care of wild birds next year which fell from their nests and need help. These have to be fed every two hours. My friend has been doing this for many years and would be very happy about a helping hand. Now I would like to know if these little nestlings might bear any sanitary risk (e.g. bird flu) which might be dangerous for persons with cystic fibrosis. I will not keep these birds in my home but in the conservatory where I will stay only to feed them. Thank you in advance for your answer.
01.12.2008
Serratia
Dear expert team, in my daughter’s throat swab (she has CF, 3 years old) the germ Serratia was detected. Which impact does this germ have on the lung function or the course of the disease? How likely is it to get rid of it ( the clinic prescribed an oral antibiotic)? Since the informational situation about this rare germ is meagre I am very grateful about every advice or expert knowledge. Greetings,
27.11.2008
CF and kidney disease
I would like to know what is known about kidney disease and CF. My daughter of 37 has CF and recently started on dialysis as well. She has a mild form of diabetes, injects 4IU per meal but has serious diabetic complaints. At first it was a mystery; she has been unexplainable very ill. Everything has been searched for, but without success. According to the nephrologist there are 4 patients in Australia with exactly the same complaints but mild or no diabetes at all. My question is whether there are more CF patients in the world with serious kidney disease; and is there any research in this field ?
27.11.2008
CF Twin babies- medical care in another EU country?
Hi, I have a case of CF in the family. These twin girls were diagnosed right after birth, and have had a rough first 6 months. The parents are a bit disappointed at the very sparse specialized care available in the country and are starting to consider getting the girls to some other country with a better health network. Is it possible for them to use the medical facilities in another EU country, and under which conditions would they be allowed to do that? Hope you can help. Thank you very much. Jose
27.11.2008
CF and hepatitis
Is it desirable to vaccinate a CF child against hepatitis? If yes, does it mean both types, A and B? What time of the year is suitable for this vaccination? Is it possible to vaccinate against flu between doses against hepatitis? Thank you for your reply.
27.11.2008
Idiopathic pulmonary fibrosis
The Q/A was not dealing with a CF topic and was therefore not relevant for the english Archive.
24.11.2008
How long Pulmozyme
Q/A was not dealing with the disease of CF and therefore irrelevant for the english Archive.
24.11.2008
Greasy and smelly stools
Why do people with CF have stools that look greasy and smell badly?
24.11.2008
Called for a retest
My baby had the heel prick test and has been called for a retest. I am going out of my mind with worry. Does this mean they have identified the defective gene? Does every suffered diagnosed always get called for the dreaded retest?
24.11.2008
Pseudomonas (2nd question)
I just asked several questions about Pseudomonas, now I got some more: To probe a patient (CF, 30 years old, under artificial respiration, pseudomonas positive, in poor condition) we use 50 ml bladder syringes [in German: Blasenspritze]. Most team members afterwards rinse them with tab water and put them on some piece of cloth to let them dry. Isn’t there a risk in this procedure? Should they rather always use a new syring? (Currently it is being changed twice a day). Can you give me some advice how to pass Kreon through the stomach tube? We tried several ways. At the moment we grind it because the tube got stuck every third day.
24.11.2008
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