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Topics
- Cystic Fibrosis
- Hello, we have 3 daughters, the one in the middle died 1976 at the age of 5 years of Cystic Fibrosis. The two other children are healthy. The oldest daughter has two healthy children. The youngest daughter would also like to have children. My question: As my wife and I are carriers of the illness, we probably have transmitted the illness. One of my daughters could therefore also be a carrier. Are there any possibilities today that one can assess if my daughter is also a carrier of the illness before the beginning of a pregnancy or is it only possible to make the diagnosis during pregnancy? Thank you very much for your answer, Yours sincerely,
- 20.11.2008
- Pseudomonas in salt water bath
- We love to go to salt water baths. Do Pseudomonas bacteria survive in salt water? If so, what is the impact of the salt concentration? Does the additional chorination has a positive effect in such baths?
- 20.11.2008
- CF patient
- CF patient, 19 years old, diagnosed with CF as a baby and has staphyloccus aureus. Diagnosed with pseudomonas a few months ago. My question is: should the patient take tobramicina, as when he was last tested for bacteria and had sputum taken, he did not have pseudomonas any more. Can pseudomonas disappear or the test was not done properly? Thank you. Mira Zdravkovic
- 20.11.2008
- Cough
- My daughter, 9 years old, has CF and we have often exacerbations. When on antibiotics we are OK, but after 2-3 weeks bad cough usually begins. Only Cefuroxim is effective as oral antibiotic. How long can antibiotics be used and are there other similar antibiotics?
- 20.11.2008
- Jogging or Walking?
- Hello, I am suffering of CF and since some months ago, I am able to motivate myself to do sports regularly. I am doing walking (without sticks) and do not notice any change of my FEV1 result, but a change of my pulmonary situation as well as an improvement of the mobilization of secretions. However, I am thinking about, if jogging would be better than walking. Many people are doing jogging and laugh about walking. Is it sensible to change form walking to jogging? Is jogging better for the health? Is the rate of success for the health bigger with jogging?
- 20.11.2008
- Paresis of the diaphragm
- Dear expert team, for several months, I am suffering of an idiopathic paresis of the diaphragm. The conductance of the phrenical nerve is diminished and as a result the diaphragm shows a slight high stand on the right side. I have already experience in CF for 38 years and I did loose 800 ml of lung volume due to the paresis (from 3.4 to 2.45 liters). Infections are seldom...since 1992 about 6 times i.v. antibiotic courses because of the finding of Alcaligines. I am not Pseudomonas positive, no diabetes, but a severe malnutrition with a BMI of 16, (177cm 51 kg), for 2 years I know about the diagnosed osteoporosis, t-score 2.7. I have the question, if there are any case reports in the CF-register of a paresis of the diaphragm and if my mutation, my genotype dF508:405+1G->A probably is the cause of the problem...and above all: how can this paresis be treated? Greetings from Switzerland
- 20.11.2008
- Vital fungi – Reishi
- Hello, can you tell me something about vital fungi in the therapy of CF? I am suffering from CF and have tried some month ago some so called vital fungi in the form of fungus- powder tablets. The Reishi fungus showed the best effect. I had the impression to breathe more easily and to sleep more deeply and more calmly at night. Can you tell me if it is worth to invest in Reishi-tablets? Or should I better do without such a kind of natural medicine?
- 17.11.2008
- family planning
- Q/A was not relevant for the english Archive as dealing with country specific insurances questions
- 17.11.2008
- Piperacillin Allergy
- Would you recommend desensitisation in a 16 year old boy who has had a generalised itchy erythematous reaction to piperacillin on 2 occasions? He currently has an exacerbation & is now growing 2 stains of pseudomonas both sensitive to pip but one resistent to gent and both resistent to cipro. He has recently had ceftaz gent. If so can you recommend a regime?
- 17.11.2008
- Experience with treatment in China?
- Dear expert team members, I believe that your experiences could help me to choose the right sources of information. Have you ever heard something interesting about Chinese medicin methods particularly physiotherapy methods focused on CF patients? Could you recomend any realated information sources please? I am interested to check the posibility to support our regular CF treatment by systematic exercising and herbal therapy. Possibly with something else. Thank you very much Roman Krapka
- 17.11.2008
