Topics

i.v. Pseudomonas eradication therapy - dosage
Dear expert team, I would have a question about the right dosage concering an intravenous Pseudomonas eradication therapy. After an inhalative trial did not bring long-lasting sucess in order to eradicate Pseudomonas completely, an i.v. therapy had been planned with my physician at the last visit. At this visit, my physician asked me about my weight. After I said it was 57 kg, the following dosage had been proposed after a short moment of thinking: 3 x 2 g ceftazidim and 1 x 300g tobramycin for 14 days. Now I read in the literature, that much higher dosages of ceftazidim should be administered. Now I am insecure, if my physician had probably made a mistake when calculating the dosage according to my weight by head. Would you please check the dosage? What would be the usual dosage for a weight of 57kg in case of an eradication therapy? Many thanks for your help in advance!
12.05.2017
Drying of the inhalation device of the e-flow
I have been given a dehydrator (normally one dehydrates fruit in it) in order to dry my inhalation device of the e-flow nebulizer after cleaning. Is that sensible or is it damaging? Some CF patients seem to use this....
12.05.2017
Baby and physiotherapy
Hello, What is the best physiotherapy technique for a CF baby? Recover the mucus that comes out with a tissue or let the child swallow the mucus? Best regards
12.05.2017
Stomach pain after drinking milk
My 12-year-old CF daughter (with digestive problems since her birth) noticed that as soon as she had breakfast (cereals with cold milk, or a bowl of hot chocolate...) despite Creon, pain in the abdomen quickly occurs in the form of spasms. Do you think that the cow's UHT milk can be the cause of these pains? If yes do you have a solution to cure these pains other than remove the milk? Thank you in advance.
03.05.2017
Disease on organs
Hello, Is a pancreatic sufficient child also at risk of developing hepatic impairment, or do these diseases only affect patients with pancreatic insufficiency? Thank you cordially
03.05.2017
CF child with contact in school to MRSA-colonized child
Are there any concerns about teaching a CF child together with a child, who is colonized in the nose-throat area with MRSA (a new trial of eradication is not planned) in a class with only few pupils (special school)?
28.04.2017
Sweat test versus newborn screening
Helllo, our daughter has had a newborn screening at birth, 2.5 years ago, the result was normal. The sweat test last week was at 95. Which test can we trust more? Other hints are cough (without mucus) and she gets infections very easily. The weight is normal.
28.04.2017
UV light
Does UV light change the surface of bacteria and can therefore be used as a lamp e.g. after cleaning of the nebulizer for irradiation?
28.04.2017
Women over 35 years / climacteric period
Hello, I am looking for information about the climacteric period in case of CF, is there any information about intake of hormones, Orkambi, transplantation and gain of weight? How does the metabolism change? What does this mean for women with CF? In general I am looking for information around this topic. Many thanks
28.04.2017
Salt capsules
Hello I would like to know if there is an alternative to salt capsules for a 5-year-old CF child because he doesn't tolerate tolerate them. Thank you
28.04.2017
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