Topics

Atelectasis
Hello, could you please tell me the difference between atelectasis and bronchiectasia. Best regards.
14.02.2017
Middle forms
Hello, I am carrying the mutation F508 and my spouse th mutation 3849 + 10kbc> T. Is it possible to know how many people have the F508 / 3849 + 10Kbc> T in the French register? And have the newborns F508 / 3849 + 10Kbc> T been tested for Guthrie? What are their symptoms? Thank you for your help. Best regards
14.02.2017
Hands and feet peeled
My 4y old daughter has a great desquamation of the feet and hands in spite of a consultation with a dermatologist and given ointments. Is it due to a too important lack of vitamins? Does she lose too much salt? Perhaps it is not due to cystic fibrosis? Thank you for your reply.
14.02.2017
Neonatal diagnostic
Hello, I would like to know to what extent a choriocentesis conducted for screening for cystic fibrosis can be reliable. Can not the sample be contaminated by the blood of the mother? Is it mandatory to wait at least for the 10th week of pregnancy to perform choriocentesis? Without counting the delay to have the results, an interrupted pregnancy, will necessarily be done by curetage? Thank you in advance.
14.02.2017
Travel to Mali
Hello, I am very worried because my husband wishes to take our 1 year-old-daughter to Mali this summer for 1 month. Knowing that they will go to a very remote village without running water (they use water from the well) or electricity. Dad thinks he can manage while she has Tobi aerosols to do 2x a day and that the nebulizer runs on electricity. And how to keep pancreatic enzymes under sometimes 35-40 degrees? In the same way, he will not, in my opinion, be able to enrich its diet with fat or to ensure a strict hygiene because no bleach etc. In short, what risks my daughter if she leaves anyway?
14.02.2017
2 times bronchitis
Hello, I have had two bronchitis in two and a half months. Does it mean that I have cystic fibrosis because I had a lot of bronchitis in the past? Thank you
14.02.2017
Cough
Hello, What is the cystic fibrosis characteristic cough? After a pneumonia, can a chronic but daily dry cough be thought to be typical for cystic fibrosis? Thank you Best regards
14.02.2017
Onion
Hello, I heard that onions could be harmful for the CF patients because they might contain the B. cepacia bacteria. Can we still eat it? Even raw? Thank you for your answers.
14.02.2017
History of Cystic Fibrosis
Hello, I would like to know if cystic fibrosis has always existed since the appearance of human beings on earth or, if not, about which century this disease appeared. What evolutionary process has led to a genetic error on the CFTR gene? Thank you very much.
14.02.2017
Great cold exists
Hello, We have our 8-year-old boy with Cystic Fibrosis and we live in an area where the temperature can fall below -20 ° C. I would have liked to know at what negative temperature he could go outside? I take him to the bus in the morning by foot and then in the evening we come back from the bus by foot and at school there are recreations. I cover him well hood + muffler then ski coat but I'm afraid that the cold will damage his lungs. Thank you in advance for your answer. Cordially
14.02.2017
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