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- ABPA_Aspergillus
- accompanying diseases
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Topics
- Soap bubbles/ Soap bubbles 2
- Hello, I would like to know if Pseudomonas germs can proliferate in soap bubbles and if our child can be infected that way. Many thanks for your reply. (Soap bubbles 2) Hello, The question was more if Pseudomonas can proliferate in the container filled with soap solution itself, for example in a "Pustefix" container. Best regards
- 08.07.2008
- Staphylococcus aureus and Haemophilus influenzae
- Dear experts, the sputum of my 8-year old daughter (CF) was positive for Staphylococcus aureus again and again in the course of the last year and sometimes positive for Haemophilus influenzae. This was treated orally with cefaclor, finally with a 14-day i.v.-therapy (cefotiam). The cough disappeared totally. After being back at school for some days, at first a rhinitis developped followed soon by a spasmodic cough. Masses of Staphylococcus and plenty of Haemophilus influenzae have again been found in the sputum. Now she takes again cefaclor orally. Which future therapeutic strategies such as a switch of the antibiotic drug or permanent antibiotic therapy do we have to take into account? Thanks in advance and best regards,
- 08.07.2008
- Refusal of MRI-investigation
- My daughter suffers from CF with a severe pulmonary involvement. One year ago, a MRI-investigation had been done in order to find out if the mostly destroyed left lower lobe should be removed (because probably lesion). As the rest of the lung did not look much better, this was disregarded. Now another investigation should be performed. My daughter refuses this, even with anesthesia she does not want to have this done. I do not see the benefit of this, as an operation is out of question at the moment anyway and the child is doing bad very often, especially from the psychical point of view. Therefore we want to do only those things to her that have to be done absolutely (she needs oxygen 24 hours a day). Now we are put under pressure from the outpatient clinic. Am I allowed to refuse my assent for such an investigation?
- 08.07.2008
- Examination by heart catheter
- My son, 30 years old, advanced CF, runs an increased temperature of about 37.8 degree Celsius in the evenings. His doctor obviously does not attribute this to pneumonia. He rather wants to search for bacteria on the heart by heart catheter. I never heart of anything like that in connection with CF. Therefore I am sceptical and actually opposed to such an examination. The doctor, however, thinks it is absolutely necessary. (During IVs my son’s body temperature is normal and the CRP drops drastically.) I request a clear and open sentence if this invasive examination is in fact indicated. Thank you very much, With kind regards
- 07.07.2008
- Pseudomonas in toothpaste
- Is it true that Pseudomonas bacteria can contaminate toothpaste. Are there alternatives to evade this daily danger of colonization? Dr. Grün
- 07.07.2008
- Again day light bath
- Hi, I don’t understand whether air ventilation substitutes for day light bath and can eliminate Pseudomonas aerosols.
- 07.07.2008
- To run off water reservoirs
- I have read in diverse guidebooks that it is important to let water run off the taps, showers etc. in the mornings, before I myself as a CF patients am going to use them. Is one time a day sufficient, or shoud the procedere be repeated alfter a longer period of stagnation (e.g. > 6 hours, shower in the evening)? Best regards,
- 07.07.2008
- Cleaning the teeth with tooth-jelly
- A question concerning cleaning the teeth: Our dentist advised our child (CF) to clean the teeth once a week with elmex tooth-jelly. Is there any risk, Pseudomonas etc? Thanks for your answer!
- 03.07.2008
- Question not relevant for Archive
- The local German question ("Erstattung von Fahrkosten") is not relevant for the English archive since it is of local interest only.
- 02.07.2008
- Next child
- I am a father of a 4 year old daughter with CF. My wife and I, we are thinking about having another child, but 25% risk of having another CF kid hold us back in our decision. Therefore I want to ask, if there is any realistic chance of having a healthy child. I mean for instance methods of artificial fertilization. In Slovakia, in such families, amniocentesis is being done. If there is a positive result, there are two possibilities. We will have a second child with CF or my wife has to undergo abortion. My wife had a spontaneous miscarriage two years ago and it was very stressful. Thanks.
- 02.07.2008
