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- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
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- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Categories of illness
- The original Q/A "categories of illness" is country specific for the Czech system and therefor not relevant for the Archive
- 02.07.2008
- School – two children with CF
- Hello, our son Dennis will start school in summer. Currently we learnt that there is already another child with CF at that school (third grade). Now our doctor is concerned, because the girl at that school is “badly off” and already had several bacteria, among them pseudomonas. Are we actually compelled to send our son to a different school? Many thanks in advance, Karin
- 26.06.2008
- Asthma inhaler
- Hello, Because of an infection my general practicioner just gave me the asthma inhaler Salbuhexal®. Now I feel a bit uncertain because I have never heard that in connection with CF and because I am not sure to what extent a general practitioner is competent with regards to CF related questions. Can I use the inhaler without concerns?
- 16.06.2008
- Inheritance of CF
- Dear experts, can you tell me, if a child of parents, both suffering from CF, will be born with CF in any case? Or is there a chance that such a child will be born healthy or as a carrier? Best regards,
- 16.06.2008
- PTC-124
- Could you please give me some information about PTC-124. My children have the mutation F508/R553X. PTC-124 is according to my research only applicable for stopp-mutations. As a consequence also to the ones of my children? How far is the research on this field really?
- 16.06.2008
- Pseudomonas in cistern water
- In our house cistern water is used for toilet flushing. The cistern is below the gorund level and is a concrete construction. The water is very cold. Can Pseudomonas bacteria live under these conditions in the cistern? If so, what is the influence of temperature? Does chlorination or any other hygienic precaution for swimming pools help to eradicate the bacteria? Should we stop using this water for our toilet?
- 16.06.2008
- alopecia (see question "Hair loss")
- For 10 years I have alopecia. All laboratory tests are normal. Nobody can explain it.
- 10.06.2008
- Air humidifier with UVC disinfection
- Which experience is available for the use of air humidifiers with UVC disinfection in homes of CF patients? Can such humidifiers be recommended?
- 10.06.2008
- Child's sport
- My child who has CF whant to attend sport cluster. May I let him to do it? What sport is most beneficial for him?
- 10.06.2008
- Titanium valve/ emphysema of the lung
- Dear expert team, We got a request in reference to an article, which appeared in the internet under http://www3.ndr.de/ndrtv_pages_std/0,3147,OID4014800_REF2478,00.html . The question is if the method described there, using titanium valves at an emphysema of the lung in COPD can also be suitable in Cystic Fibrosis. Many thanks in advance for your efforts!
- 10.06.2008








