Topics

Categories of illness
The original Q/A "categories of illness" is country specific for the Czech system and therefor not relevant for the Archive
02.07.2008
School – two children with CF
Hello, our son Dennis will start school in summer. Currently we learnt that there is already another child with CF at that school (third grade). Now our doctor is concerned, because the girl at that school is “badly off” and already had several bacteria, among them pseudomonas. Are we actually compelled to send our son to a different school? Many thanks in advance, Karin
26.06.2008
Asthma inhaler
Hello, Because of an infection my general practicioner just gave me the asthma inhaler Salbuhexal®. Now I feel a bit uncertain because I have never heard that in connection with CF and because I am not sure to what extent a general practitioner is competent with regards to CF related questions. Can I use the inhaler without concerns?
16.06.2008
Inheritance of CF
Dear experts, can you tell me, if a child of parents, both suffering from CF, will be born with CF in any case? Or is there a chance that such a child will be born healthy or as a carrier? Best regards,
16.06.2008
PTC-124
Could you please give me some information about PTC-124. My children have the mutation F508/R553X. PTC-124 is according to my research only applicable for stopp-mutations. As a consequence also to the ones of my children? How far is the research on this field really?
16.06.2008
Pseudomonas in cistern water
In our house cistern water is used for toilet flushing. The cistern is below the gorund level and is a concrete construction. The water is very cold. Can Pseudomonas bacteria live under these conditions in the cistern? If so, what is the influence of temperature? Does chlorination or any other hygienic precaution for swimming pools help to eradicate the bacteria? Should we stop using this water for our toilet?
16.06.2008
alopecia (see question "Hair loss")
For 10 years I have alopecia. All laboratory tests are normal. Nobody can explain it.
10.06.2008
Air humidifier with UVC disinfection
Which experience is available for the use of air humidifiers with UVC disinfection in homes of CF patients? Can such humidifiers be recommended?
10.06.2008
Child's sport
My child who has CF whant to attend sport cluster. May I let him to do it? What sport is most beneficial for him?
10.06.2008
Titanium valve/ emphysema of the lung
Dear expert team, We got a request in reference to an article, which appeared in the internet under http://www3.ndr.de/ndrtv_pages_std/0,3147,OID4014800_REF2478,00.html . The question is if the method described there, using titanium valves at an emphysema of the lung in COPD can also be suitable in Cystic Fibrosis. Many thanks in advance for your efforts!
10.06.2008
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