Identification de l'utilisateur
Entrez votre nom d'utilisateur et votre mot de passe pour vous identifier:
Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Pregnancy
- I am 32 years old and suffering since my first year of life of an asthma. Now we would like to have a baby, but I have some concerns and want to have it made clear for myself first, as it is me who have to carry the child to full term. For the last 25 years I am taking the following drugs: Sultanol (drug: salbutamol) 3x Atrovent (drug: ipratropiumbromide) 3x DNCG (drug: chromoglycinacid) 3x 8 mg prednisone 500 mg theophylline Verapamil 2x L-Thyroxin (drug: levothyroxine) 1x Aarane (drugs: chromoglycinacid and reproterole) as needed Viani forte (drugs: salmeterole and fluticasone) 2x My pulmonary function differs a lot from time to time and the peak-flow results differ in the course of the day. I get along well because I am used to it like this, and because I am able to experience my life with my boyfriend as "normal". But I have some concerns if I am going to harm my baby and that it is probably egoistic to think of this thought. I have already answered this question some time ago, but I did not register. Probably this was the reason I did not get an answer. Many thanks in advance,
- 21.04.2008
- Visit at the dentist - sealing of the teeth
- We have been to the dentist with my child suffering from CF. He advised us to seal the teeth. Are there any risks (Pseudomonas aeruginosa or others)? I would be pleased to get an answer from you. For the necessary drilling the sterile sodium chloride solution is adapted to an external connection in order to exclude the danger of Pseudomonas.
- 21.04.2008
- Fountain water
- Hello, We are planning a vacation abroad. The travel organizer informed us that all pools are filled with fountain water that is exchanged every two to three days. The tap water is also fed by this fountain. Can a stay for a CF patient be recommended? Best regards A second question has been posed on this topic by the same questioner after the first answer: "This is the information of the travel organizer; is usage okay now for a CF child? Kindly excuse all these questions.": "The water in the children's swimming pool is not rain water but water from our fountain. In the basin there is a constant fresh influx. Therefore, it is unchlorinated. The pool is emptied and cleaned bi-weekly approximately since strong solar irradiation causes a slight algae accumulation that we remove by steam blasting. – thus permanently fresh water from our fountain with drinking water quality."
- 09.04.2008
- Pediatrician budget CF-drugs
- Question and answer are special for the German medical system, therefore not relevant for the archive and have not been translated.
- 07.04.2008
- Is the usage of ECORN-CF expert advice free of costs?
- Is all this for free (registration, etc.)?
- 07.04.2008
- Reflex massage
- How is the benefit of reflex massage in CF, are there any intolerances? Is it advisable for severely ill CF patients not to do this kind of therapy due to side effects? Are there any parameters like pulmonary function or others for this kind of therapy? Many thanks.
- 21.03.2008
- Training
- My son (19 years old) suffers from CF since birth, including cirrhosis of the liver, pancreatic insufficiency, since 2002 diabetes - still on tablets - colonization with Pseudomonas, since 2006 colonization with Burkholderia cepacia - 2-3 times a year i.v. therapy. In September 2006 he started a training from the job center in Berchtesgarden (Germany). There he had to quit the training in december 07 because he was considered highly infectious for the other young persons. Does that mean as a consequence that he will not be able to take part in any training? Are there any regulations or conditions from the insurances? I hope you will be able to give me some tips. Many thanks vor your efforts. Yours sincerely,
- 21.03.2008
- Is a single test certain?
- Hello! I am 15 years old and about 6,7 years ago I underwent a sweat test for CF and the result was negative. Since some weeks however, I have possible sings of CF occurring with increased frequency. Now I would like to know if a single test can give a certain and irrevocable result...?
- 21.03.2008
- Day light bath
- Hello, I understand, that the recommendation to open the water taps for 1-2 min in the morning, to flush the toilet and to open the window shortly, is linked to a day light bath. What should I do, if a do not have a day light bath? Just to turn on the air conditioning or is this not effective? Do a have a higher risk, if I have no day light bath? Many thanks for your answer and best regards.
- 21.03.2008
- recomended books about cf
- Hi! I live in norway, and am a mother of a boy with cf.I am also a masterstudent in pedagogic, and i am about to write an academical desertation abot beeing parents /familie to children with cf. I do But i have difficulties with finding newer literature,and research, about this topic. Here on my spot cf is rare, only 250 people got it , so its a kind of unknown disaese, probably thats why there is so difficult for me to find "things" for my assignment. Does anyone have some recommendations, or ideas about academical books or research cocerning Cf_family ?? Thanks. Rita
- 17.03.2008
