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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
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- swine flu_novel influenza
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- ventilation
Topics
- Amyloidosis in CF
- Dear expert team, Do you know an expert who is well experienced in amyloidosis in Cystic Fibrosis? Especially the kidneys are severely affected by the amyloidosis. The FEV1 is approx. 35%. A chronic colonization with pseudomonas exists for many years. Age 45 years. Many thanks for your answer.
- 15.02.2008
- Inhaler
- Which new insights are there regarding the e-Flow Rapid what the remaining rest in the inhaler is concerned? Thank you M. Russy
- 15.02.2008
- Heart transplanted CF patient and pregnancy
- Hello, My fiancée and I are strongly engaged in thinking about starting a family. Since she has Cystic Fibrosis and furthermore was heart transplanted, we are very insecure if this is possible at all. She is 24 years old and the heart transplantation was done at the age of 14. Her general condition is very good. Is there a substitute for the immunosuppresives that she could take during the pregancy? Is a pregnancy under these circumstances (two problem areas) possible at all? Thank you very much for your efforts.
- 15.02.2008
- side effects of Prednison
- When a child does not have a 100 % confirmed diagnosis of aspergillosis, how long is it necessary to take the Prednison? I am afraid of side effects.
- 15.02.2008
- Atypical CF
- I would like to ask: Since September my daughter has had repeated stomach pain, throat pain and headaches, and the doctor has always said that she has some kind of viral infection but she always prescribes her only Stoptussin for the cough. She has an atypical form of CF. We inhale amiloride. I would like to ask if she has been sick for so long whether antibiotics should have been prescribed since September. She has only been in school for three weeks since September, and now she has to have tests in all subjects because she is always absent. Please give me advice what to do next.
- 28.01.2008
- Fever attacks
- Permanently reoccuring fever attacks of 39-40°C. They come and take 1-3 days and then go away slowly. What can that be? Age: 22 years old.
- 28.01.2008
- Check-up at CF centre
- Hello, could the visit at Prague CF centre be managed as 1 day hospitalization like in Brno or do we have to stay in hospital for longer time?
- 28.01.2008
- Sweat test
- Hello, I want to ask about my 9 month son. I think that he is producing a lot of mucus and his sweat is very salty. Should I ask for chloride sweat test? I have not realized any other CF symptoms. I want to ask more if my GP will do this test or do we have to visit a specialized place?
- 28.01.2008
- Water supply
- Hello, we would like to use our well for water supply. Is this water suitable for a CF individual? After a normal investigation in Sweden, we were told that it has drinking water quality. Thanks
- 28.01.2008
- ABPA
- Hallo, Our son (18) suffers from cystic fibrosis and allergic aspergillosis. The following questions lead to discussions many times: 1. Can cheese which is refined with molds (e.g., blue cheese) be recommended for a CF individual? 2. Is the mold which covers older cheeses, refined with molds, more likely to be toxic or can this surface mold be considered as being suitable for consumption? Martina Kennel-Haas
- 28.01.2008
