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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
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- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Disease post transplantation
- Hello, In a transplant patient, the transplanted tissue is healthy but it remains the genetic anomaly, so can the disease again damage his "new" lungs in the long term? Thank you
- 17.03.2017
- White secretions
- Hello My 20-month-old baby has an inflammation of the nasal mucosa since December. His nose secretions only flow in his throat and do not come through his nose. On the advice of my pharmacist, I gave him a cure with "actisulfur"and the mucus came out white, whereas when I washed his nose essentially to the physiological serum, there was little or no secretions but it remained transparent. What is the significance of these white secretions? Is it the actisulfur that colors the mucus? cordially
- 17.03.2017
- Practical year medicine in case of CF
- My son is 24 years old and studies (with empathy) medicine. In summer he will do his second state exam. His health status is relatively stable, on the other hand he is getting easliy ill in case of a high physical burden. He is actually very afarid of the practical year, especially concerning the part in internal medicine. He is especially afraid of the germ load, there. After the practical year he wants to do his specialization in any case in psychiatry, in order to avoid the health risk as far as possbile. My question is: how are the chances for a CF patient to find a place in internal medicine, where he can be relatively sure, that he does’t get new germs? Are there any possibilities here to find a „special program“ for CF patients? Where can he turn to in order to find this out?
- 17.03.2017
- Bacteriophages
- Hello, I know, that the phage therapy is not licensed, yet. However, I wonder, how far research is concerning the fight against germs like MRSA, Pseudomonas aeruginosa and Staphylcoccus aureus. I myself have Pseudomonas and Staph. aureus colonization, my sister, also suffering from CF, has MRSA that is actually treated for the second time. Many thanks for your efforts.
- 17.03.2017
- Influenza vaccination for a one-year-old child with deltaF508
- Hello, our one-year-old daughter is at the moment vaccinated with living viruses against measles, rubella and varicella etc. Would it be advisable to have a flu vaccination done at the same time? Many thanks for your answer.
- 17.03.2017
- Hope
- Hello can we really have confidence in medicine? Must we really believe that one day cystic fibrosis will be cured? Is a treatment for Class 5 mutations underway? Best regards.
- 17.03.2017
- Question on food oils
- Hello , I am currently asking a lot of questions about alimentary oils. Can CF people consume cold-extracted oils (rather used by small specialized companies) compared to refined, inert and virtually unalterable oils? Can we consume unrefined oils, cold extracted oils or is there a risk of developing germs and bacteria in these products that would be dangerous to us? Are the food hygiene standards of its small structures (sometimes traditional) adapted to our pathology? Thank you for your reply, cordially
- 17.03.2017
- Mutations F508del and Q220X
- Hello, Our son was diagnosed at birth following a meconium ileus that caused occlusion ... I would like to have information about delta mutations F508del and Q220X. Thank you.
- 17.03.2017
- Mutations F508del / Q220X
- Hello, Our three month old son was diagnosed at birth. It has the mutations F508del and Q220X. I would like to know how people with its two mutations evolve. Thank you
- 17.03.2017
- Reverse osmosis device
- Dear expert team, we are planning to install in our home a reverse osmosis filter device. There are two alternatives offered: 1. Standard device, that uses a 10 liter storage, that is normally filled always automatically and from which the rinsed water can be taken out quickly 2. „Direct flow“ device, without storage, that provides rinsed water about 1 to 1,5 litres per minute, therefore less comfortable Question: are there any concerns if our CF grandchild is visiting us and have both devices to be judged differently concerning the risk of contamination with germs? What would you recommend? Many thanks for your advice.
- 17.03.2017
