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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Baby and physiotherapy
- Hello, What is the best physiotherapy technique for a CF baby? Recover the mucus that comes out with a tissue or let the child swallow the mucus? Best regards
- 12.05.2017
- Stomach pain after drinking milk
- My 12-year-old CF daughter (with digestive problems since her birth) noticed that as soon as she had breakfast (cereals with cold milk, or a bowl of hot chocolate...) despite Creon, pain in the abdomen quickly occurs in the form of spasms. Do you think that the cow's UHT milk can be the cause of these pains? If yes do you have a solution to cure these pains other than remove the milk? Thank you in advance.
- 03.05.2017
- Disease on organs
- Hello, Is a pancreatic sufficient child also at risk of developing hepatic impairment, or do these diseases only affect patients with pancreatic insufficiency? Thank you cordially
- 03.05.2017
- CF child with contact in school to MRSA-colonized child
- Are there any concerns about teaching a CF child together with a child, who is colonized in the nose-throat area with MRSA (a new trial of eradication is not planned) in a class with only few pupils (special school)?
- 28.04.2017
- Sweat test versus newborn screening
- Helllo, our daughter has had a newborn screening at birth, 2.5 years ago, the result was normal. The sweat test last week was at 95. Which test can we trust more? Other hints are cough (without mucus) and she gets infections very easily. The weight is normal.
- 28.04.2017
- UV light
- Does UV light change the surface of bacteria and can therefore be used as a lamp e.g. after cleaning of the nebulizer for irradiation?
- 28.04.2017
- Women over 35 years / climacteric period
- Hello, I am looking for information about the climacteric period in case of CF, is there any information about intake of hormones, Orkambi, transplantation and gain of weight? How does the metabolism change? What does this mean for women with CF? In general I am looking for information around this topic. Many thanks
- 28.04.2017
- Salt capsules
- Hello I would like to know if there is an alternative to salt capsules for a 5-year-old CF child because he doesn't tolerate tolerate them. Thank you
- 28.04.2017
- Smell dead animal
- Hello, In the classroom of my CF daughter, there is a foul smell: it would be a died animal under the class or in the ceiling. Is the air of the class dangerous for my daughter?
- 13.04.2017
- Pregnancy and aerosol
- Hello, Mum of a 20-month-old CF baby, I just learned about my new pregnancy. While waiting for a prenatal test to know if the child is affected, can I continue to administer tobramycin and colistin aerosols (and pulmozyme in the morning) alternately twice a day. Knowing that during aerosol therapy, my daughter is sitting on my knees so I breathe a little the smoke coming out of the mask. Thank you for your reply.
- 13.04.2017
