Topics

Desire to have children
Hello, My boyfriend and I (CF, 25 years old, 179cm, 67kg, FEV1: 90%) have been trying to get pregnant for two years and are now under treatment at a center for patients who wish to have children. However, the staff there has not been able to provide any (satisfactory) answers to some CF-specific questions: How likely is it that the fallopian tubes, which were previously checked for permeability, get blocked again and in which space of time could this happen? Is it possible that the egg’s or sperms’ passage gets blocked even though the tubes are clear? Does a Sims-Huhner test (which doctors have refused so far) make sense even before insemination? Is there a similar test that can be carried out to check the tissue of the uterus and the fallopian tubes that is relevant for an insemination? Would the health insurance company cover the cost for an SH test? If not, how much would it cost? Are there drugs that reduce the likelihood of getting pregnant? I am currently taking acetylsalicylic acid (expectorant), dornase alfa, sodium chloride (inhalation), flucloxacillin, and a vitamin compound (ADEK). Additionally, during times in which I can exclude a pregnancy, I occasionally inhale Tobramycin for two weeks. [geographically specific inquiries were omitted in the translation] Kind regards, Sarah
16.02.2009
high resolution CT
My boy is 8 months old and diagnosed with cystic fibrosis. I would like to know what medical centre has computed tomographe with high resolution.
16.02.2009
Cystic fibrosis
Do you know haw many people suffer from CF on a worldwide scale. Thank you for your help
05.02.2009
Cystic Fibrosis
Does anyone know if the salt air purifer by salin works well for a cf patient?
03.02.2009
Salty kiss
My son just had a sweat test done to exclude CF. We don’t have the results yet. If I kiss my son there is no salty taste so I wonder how this is. My son doesn’t really sweat all that much. Does the sweat of a child with CF always taste salty when you kiss him or not?
03.02.2009
Life of an average 16 year old adolescent with CF
What does an average day look like in the life of an average 16 year old adolescent with cystic fibrosis?
03.02.2009
CF and streptococcus
What kind of risk does a patient with CF have, when he has streptococcus.
03.02.2009
Health
Hello, I have CF and am 31 years old. I am doing well, and most of the time I feel fit and healthy. My FEV1 ranges from 72 to 84 %, depending on my condition. I work a lot, though, between 10 and 14 hours a day, and don’t take a lot of time off. Would you consider this a health risk? Best wishes.
03.02.2009
Sweat test with borderline values
Hello, my 4-year-old daughter took a sweat test today, since she frequently has a cough. Up until the day before the test, she was treated with antibiotics (light case of pneumonia). The result was a value of 46, which, however, has not been confirmed by the lab yet. The doctor said my daughter still had some mucus still but that the lung was ok again. I was told to call back later, and if the lab value differs from the one above, she could give the all-clear. What do you think about this? Do we have to worry?
03.02.2009
genetics
(to dr Sobczyńska) Are the mutations F508 del and R334W, if present together, severe form of CF and what is the prognosis? Should any special treatment of the CF patient be introduced?
03.02.2009
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