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- accompanying diseases
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Topics
- Risk of CF gene in child
- I am not carrying the CF gene, but the father is. How big is the chance that my child has the CF gene.
- 20.11.2008
- Pulse frequency
- Dear expert team, It strikes to my son, 30 years old, end-stage Cystic Fibrosis, long-term oxygen therapy, that about 1-2 hours after the intake of Ibuprofen he does not only feel better in general, but also his increased pulse freuquency at rest of 120-130 beats per minute does come down significantly about 10 beats. Is there any explanation for that effect of Ibuprofen? Yours sincerely,
- 20.11.2008
- ADHD (attention deficit hyperactivity disorder) and Cystic Fibrosis
- Our son (18) suffers from CF (permanent antibiotic treatment etc. for the last 15 years). Even since the earliest childhood he showed the typical symptoms of ADHD (attention deficit hyperactivity disorder), a final diagnosis has not been made yet. (My suspicion is that the physicians are reserved in making that diagnosis, as long as the outer framework conditions are working halfway. But on the other hand our son has probably only passed the secondary school certificate because the teachers had consideration due to his CF...) Is there any experience with ADHD and CF? Is there especially any experience about the interplay of the possible drugs? Thanks for your information
- 20.11.2008
- Again ADHD (attention deficit hyperactivity disorder) and Cystic Fibrosis
- Thank you for replying [refers to an answer given to an earlier question about ADHD]. But one question that is important to me is still open: Which interactions are know between Methylphenidat and antibiotics? In several discussion forums about ADHD one can find the statement that Methylphenidat is without effect while taking antibiotics. But I only found statements of concerned persons, not of medical doctors. Best regards and thank you.
- 20.11.2008
- Tumor-markers elevated in CF??
- Hello, Is there any statistical data that in CF so-called tumor-markers (CA125, C19-9) can be elevated as a consequence of the illness of CF? Years ago, the C19-9 had been elevated, an MRI of the pancreas did not show any result; now the CA125 is slightly elevated, which, according to the gynecologist, could be a sign for endometriosis. However, is it not possible that the illness of CF could result in a slight elevation of the inflammation-, tumor-markers? Then I could save a laparoscopy. Many thanks,
- 20.11.2008
- Badly worsening of the eyes/astigmatism
- Dear experts, I am 33 years old and suffering from CF and from astigmatism of the eyes. There is a very strong worsening of my visual function from -3.50 to -7.50 for the right eye and to -6.50 for the left eye and without a visual aid I have only a visual function of 50% left. I am now very afraid of developing a diabetes. Does it make sense to have a normal blood cell count done or is it better now after a year to do the longtime test where one has to drink glucose before the test? I have read that a drug with the chemical agent Quetiapin, can worsen the situation and one can get a cirrhosis of the liver and a diabetes can become worse.
- 20.11.2008
- Cystic Fibrosis
- Hello, we have 3 daughters, the one in the middle died 1976 at the age of 5 years of Cystic Fibrosis. The two other children are healthy. The oldest daughter has two healthy children. The youngest daughter would also like to have children. My question: As my wife and I are carriers of the illness, we probably have transmitted the illness. One of my daughters could therefore also be a carrier. Are there any possibilities today that one can assess if my daughter is also a carrier of the illness before the beginning of a pregnancy or is it only possible to make the diagnosis during pregnancy? Thank you very much for your answer, Yours sincerely,
- 20.11.2008
- Pseudomonas in salt water bath
- We love to go to salt water baths. Do Pseudomonas bacteria survive in salt water? If so, what is the impact of the salt concentration? Does the additional chorination has a positive effect in such baths?
- 20.11.2008
- CF patient
- CF patient, 19 years old, diagnosed with CF as a baby and has staphyloccus aureus. Diagnosed with pseudomonas a few months ago. My question is: should the patient take tobramicina, as when he was last tested for bacteria and had sputum taken, he did not have pseudomonas any more. Can pseudomonas disappear or the test was not done properly? Thank you. Mira Zdravkovic
- 20.11.2008
- Cough
- My daughter, 9 years old, has CF and we have often exacerbations. When on antibiotics we are OK, but after 2-3 weeks bad cough usually begins. Only Cefuroxim is effective as oral antibiotic. How long can antibiotics be used and are there other similar antibiotics?
- 20.11.2008
