Topics

uridintriphosphate
Hello, In the book „Cystic Fibrosis in Practice“ by „Věra Vávrová et al.,“ there is a note (p. 64) that a good combination for inhalation is amiloride with uridintriphosphate. Among other things it is mentioned that uridintriphosphate is not available here. I would like to ask whether this is still the case, whether it is still not available (and for which reasons), and whether it is really such a good medication as stated in the book. Thank you
21.07.2008
Cocaine
Dear expert team, I am interested if cocaine usage in CF represents a particular risk. My experiences up to now show me that during the consumption my condition is rather improving, probably due to the bronchia extending effects. During the following days, however, my physical condition was pretty bad. Is the immune system weakened by cocaine or are there other reasons for the considerable increase of PA [translator: we assume that the questioner is referring to Pseudomonas Aeruginosa]? Or is this just caused by physical exhaustion because one does not have a sense of one's own limits? Are there any intolerances or interactions with the typical CF medicaments? How is the situation after TX [translator: we assume that the questioner means "transplantation", especially "lung transplantation"], which risks will come added to that and how is the combinability with the medicaments? I hope you can clarify some of my questions.
14.07.2008
Physiotherapy/vest
It is known that chest percussion is the main recommended technique of physiotherapy in our country. In the case of my daughter, aged 6 years and a half, we could apply this method very well so far (plus complementing techniques, such as the flutter, respiration exercises, sports). But my daughter is old enough now to say that she does not want to do percussion, it takes too much because it is boring and even painful, sometimes. I know that there is another method used for the lung clerance, namely vest with high frequency. I would like to know what is your opinion about the vest and if you have a patient who uses it and what is their opinion about the vest.
14.07.2008
Prenatal checkup and future insurance
This answer and question is not relevant for the english Archive
09.07.2008
Stenotrophomonas maltophilia therapy
Dear Sirs, How can Stenotrophomonas maltophilia be treated effectively without inducing resistance?
09.07.2008
Fountain again
Please see question and answer under "Fountain water"
08.07.2008
Autoimmune-Thyroiditis and Cystic Fibrosis
Dear experts, Is there a connection between Cystic Fibrosis and Autoimmune-Thyroiditis?
08.07.2008
Candida Serology
What means "Candida Antigen < 1: 4/ Ref.-interval"?
08.07.2008
Lung examination CT or MRI
Dear expert team, With which examination method a radiologist or lung specialist is able to identify the following findings/diagnoses: • lung emphysema • obstructive bronchitis (COPD) • bronchiectasis • pulmonary embolism What would be advisable to do with regards to the diseases mentioned above in order to make a more precise diagnosis (X-ray, CT or MRI). Thank you for answering quickly.
08.07.2008
Heterozygote?
Hello, What does heterozygote mean? The values of my niece are: 3849 + 10 KgC-T Heterozygote und de IS 508 Heterozygote. What do these values mean and with which degree of CF one has to face? My sister is supposed to deliver at the end of May; can she deliver in a simple cottage hospital with these values? Thank you for your reply.
08.07.2008
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