Topics

Fountain again
Please see question and answer under "Fountain water"
08.07.2008
Autoimmune-Thyroiditis and Cystic Fibrosis
Dear experts, Is there a connection between Cystic Fibrosis and Autoimmune-Thyroiditis?
08.07.2008
Candida Serology
What means "Candida Antigen < 1: 4/ Ref.-interval"?
08.07.2008
Lung examination CT or MRI
Dear expert team, With which examination method a radiologist or lung specialist is able to identify the following findings/diagnoses: • lung emphysema • obstructive bronchitis (COPD) • bronchiectasis • pulmonary embolism What would be advisable to do with regards to the diseases mentioned above in order to make a more precise diagnosis (X-ray, CT or MRI). Thank you for answering quickly.
08.07.2008
Heterozygote?
Hello, What does heterozygote mean? The values of my niece are: 3849 + 10 KgC-T Heterozygote und de IS 508 Heterozygote. What do these values mean and with which degree of CF one has to face? My sister is supposed to deliver at the end of May; can she deliver in a simple cottage hospital with these values? Thank you for your reply.
08.07.2008
Oxygen supply during flight
Dear expert team, […] Since my last flight I know that oxygen supply during the flight would be good to have and therefore I would like to know how and with which airlines and of course at which price oxygen supply can be applied for. Altogether I would like to know if there is a list of countries that have out patient clinics which can be contacted confidentially in case of emergency. Thank you!
08.07.2008
Having a baby despite Cystic Fibrosis
Hello dear experts, I am 25 years old and have Cystic Fibrosis. Currently, I live together with my boyfriend and our little dog, but we would like to expand our family somewhen. I find it very difficult to find out in which way a pregnancy would have an effect on me and the course of the disease and which possibilities for treatment with medicaments exist during the pregnancy. Currently, I am taking pancreatic enzymes, Dornase alpha, NaCl, Ipratropiumbromide, Salbutamol, Acetylcystein and several vitamins. Infections are usually treated with Ciprofloxacin in my case. How is an infection treated during the pregnancy? And finally, how can I prepare myself in the best possible way for the pregnancy? Many greetings and thank you for your effort, Tonja & Sven
08.07.2008
Hair loss
I would like to ask, what should I do then hair loss began. Thank you for the answer.
08.07.2008
Imminent pulmonary exacerbation due to construction emissions
We have a 3 year-old daughter with CF and live in a rented appartment with garden. An investor has taken over the premises and wants to sell the garden as building land and furthermore wants to carry out extensive structural changes in the house itself. We are afraid that the dust and exhaust emissions caused by that will lead to an exacerbation of our daughter’s state of health. Which legal possibilities are there to avoid the building measures or to delay them at least? Thank you in advance.
08.07.2008
Distented stomach
My daughter is 2 years old and was born with a meconium ileus. Therefore the diagnosis of CF was made very quickly. She has had an artificial anus that has been reposed. Since then she suffers from an extremely distended abdomen, in the ultrasound you see very very much air in the stomach and bowels. What can be the reasons for that and what can be done?
08.07.2008
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