Topics

Sweat test result
Hello, today a sweat test has been performed to our 2 year-old son. The result has been 60 mmol/l sodium chloride. The hospital informed us about the following interpretation: 80= pathologic In all other publications however, other limits are mentioned: 60= pathologic What is correct? Is there no uniform classification? We are going to do another test, but with this different classifications it seems not even possible to get a more meaningful result..... Many thanks for your quick answer, Yours sincerely,
23.04.2008
vitamin k
I like to know what do you believe about taking vit k. Some doctors said to us not to take it, others to take it for osteoporosis. My daughter is 19 years old.
21.04.2008
eradication of MRSA
My daughter, 17 years-old, has been tested for the first time positive for MRSA, only in the sputum. It is planned to try to get rid of it now. How can this be achieved and how great are the chances of having quite a durable success? In case she will change over to an adult CF-center which provides special rooms for patients with problematic germs, how great is the risk of aquiring further germs (my daughter is free of pseudomonas and the MRSA has no effect on the clinical status?). Furthermore my daughter wants to know why she is being isolated while hospital staff is not even examined and if she has to fear up to now at any contact with others (in the freetime, school, work)- assumed the eradication is successfull - to get infected again. Right now there must also have been a source of the germ somewhere. How do other teenagers cope with the situation to be treated as a leper? Please give me an answer as soon as possible as I do not know how I can help my daughter. Concerning her health she is stable, in contrast to her psyche at the moment.
21.04.2008
I.v.- therapy
Dear expert team! My son (29 years old) shows all characteristics of an exacerbation. CRP 130, hemoglobin 9,6, more infiltrates in the lung, suspicion of atelectasis, weight loss etc. He continues his basis therapy: inhalation of tobramycin (TOBI), Zithromax (drug:azithromycin) and Avelox (drug:moxifloxacin) orally. His doctor in charge is of the opinion that we can wait a little further. Is this correct? Yours sincerely,
21.04.2008
Soap bubbles 2
Hello, The question was more if Pseudomonas can proliferate in the container filled with soap solution itself, for example in a "Pustefix" container. Best regards
21.04.2008
Colistin CF for a 3 years old child?
Three weeks ago we received the diagnosis that our 3,5 years old son is suffering from Cystic Fibrosis. He is very well. Currently, he receives the following medicaments: In the morning: Inhalation with nacl 0,9% 1,5 ml and acc inject 1,5ml Ciprobay 3ml Cephalexin 10ml Multibionta Antioxidant Kreon At noon: Kreon In the evening: Inhalation with nacl 0,9% 1,5 ml and acc inject 1,5ml Ciprobay 3ml Cephalexin 10ml Now we have been prescribed Colistin CF (inhalation of 2 amp. per day). The package insert says: "… Therefore, the usage of Colistin CF is unsuitable for children under six years." Why have we been prescribed this medicament and what does the indication of age means? Best regards BB
21.04.2008
Pregnancy
I am 32 years old and suffering since my first year of life of an asthma. Now we would like to have a baby, but I have some concerns and want to have it made clear for myself first, as it is me who have to carry the child to full term. For the last 25 years I am taking the following drugs: Sultanol (drug: salbutamol) 3x Atrovent (drug: ipratropiumbromide) 3x DNCG (drug: chromoglycinacid) 3x 8 mg prednisone 500 mg theophylline Verapamil 2x L-Thyroxin (drug: levothyroxine) 1x Aarane (drugs: chromoglycinacid and reproterole) as needed Viani forte (drugs: salmeterole and fluticasone) 2x My pulmonary function differs a lot from time to time and the peak-flow results differ in the course of the day. I get along well because I am used to it like this, and because I am able to experience my life with my boyfriend as "normal". But I have some concerns if I am going to harm my baby and that it is probably egoistic to think of this thought. I have already answered this question some time ago, but I did not register. Probably this was the reason I did not get an answer. Many thanks in advance,
21.04.2008
Visit at the dentist - sealing of the teeth
We have been to the dentist with my child suffering from CF. He advised us to seal the teeth. Are there any risks (Pseudomonas aeruginosa or others)? I would be pleased to get an answer from you. For the necessary drilling the sterile sodium chloride solution is adapted to an external connection in order to exclude the danger of Pseudomonas.
21.04.2008
Fountain water
Hello, We are planning a vacation abroad. The travel organizer informed us that all pools are filled with fountain water that is exchanged every two to three days. The tap water is also fed by this fountain. Can a stay for a CF patient be recommended? Best regards A second question has been posed on this topic by the same questioner after the first answer: "This is the information of the travel organizer; is usage okay now for a CF child? Kindly excuse all these questions.": "The water in the children's swimming pool is not rain water but water from our fountain. In the basin there is a constant fresh influx. Therefore, it is unchlorinated. The pool is emptied and cleaned bi-weekly approximately since strong solar irradiation causes a slight algae accumulation that we remove by steam blasting. – thus permanently fresh water from our fountain with drinking water quality."
09.04.2008
Pediatrician budget CF-drugs
Question and answer are special for the German medical system, therefore not relevant for the archive and have not been translated.
07.04.2008
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