Topics

Standardized CF care
Could you please inform me which medical facilities in Czech Republic are able to provide care for a CF patient at the required standard level? Thank you
15.02.2008
Diagnosis during pregnancy
Hello, My sister is in her 6th month of pregnancy. Since there is CF in our family she underwent an amniocentesis and the child carries both defect genes. When the last ultrasound scan was done everything was ok organically (intestine, etc.). Should my sister go the a CF ambulance before birth and also deliver there? Or is it sufficient to deliver in a hospital with children's hospital and go to an ambulance later? Or depending on what should be make a decision?
15.02.2008
Consultation hours for adults
Hello, I would like to know where special consultation hours for adult CF patients are scheduled in the German speaking region? Many thanks.
15.02.2008
Pseudomonas aeruginosa
How can you avoid Pseudomonas aeruginosa infection? What should be avoided? Sinks and flower vases?
15.02.2008
Specialised centers and organizations
I am a student and am writing my final thesis on the topic of Quality of Life for Adolescents and Adults with CF. I would like to ask whether you can advise me where I can find an overview or more detailed information about all specialised centres and organisations related to CF? I have only found a fraction of this information on the internet. Thank you for your answer, Anna M.
15.02.2008
IV at home
Dear expert team, I hope you can help me. My son needs an IV therapy now and would like/should do it at home because there are rarely beds for CF patients in the hospital in charge. Is there a company in the Vienna [Austria] area offering such therapy? The Fresenius company does not offer it any more. Best regards, Gerda Schmit
15.02.2008
Amyloidosis in CF
Dear expert team, Do you know an expert who is well experienced in amyloidosis in Cystic Fibrosis? Especially the kidneys are severely affected by the amyloidosis. The FEV1 is approx. 35%. A chronic colonization with pseudomonas exists for many years. Age 45 years. Many thanks for your answer.
15.02.2008
Inhaler
Which new insights are there regarding the e-Flow Rapid what the remaining rest in the inhaler is concerned? Thank you M. Russy
15.02.2008
Heart transplanted CF patient and pregnancy
Hello, My fiancée and I are strongly engaged in thinking about starting a family. Since she has Cystic Fibrosis and furthermore was heart transplanted, we are very insecure if this is possible at all. She is 24 years old and the heart transplantation was done at the age of 14. Her general condition is very good. Is there a substitute for the immunosuppresives that she could take during the pregancy? Is a pregnancy under these circumstances (two problem areas) possible at all? Thank you very much for your efforts.
15.02.2008
side effects of Prednison
When a child does not have a 100 % confirmed diagnosis of aspergillosis, how long is it necessary to take the Prednison? I am afraid of side effects.
15.02.2008
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