User login
Enter your username and password here in order to log in on the website:
Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- CF out-patient department Frankfurt
- Does the CF out-patient depatment in Frankfurt/M. (Germany) take also children for treatment? For some time I am thinking of changing the out-patient department... Could you give me some information?
- 14.12.2007
- Pneumococcal vaccine
- Dear expert-team, We would like to have our son (4 ½ years old, diagnosis of CF 1 ½ years ago) vaccinated against Streptococcus pneumoniae, what has not been done until now. The paediatrician is of the opinion that it is advisable to use the polysaccharide vaccine and the conjugate vaccine. I thought that the conjugate vaccine is only used in babies and small children and you do not need this kind of vaccine anymore as soon as the polysaccharide vaccine can be used (which covers a border spectrum of S. pneumoniae anyhow). Please give me some information what is advisable to do. Many thanks!
- 14.12.2007
- Uric acid
- Dear ladies and gentlemen, I have an increase of the uric acid for sometime. Are there any general recommendations for CF, at what amount of the uric acid this should be treated and which drugs can be used? Is this also a typical finding in CF? I have heard once, that the digestion enzymes (Kreon, Panzytrat etc.) contain a very high amount of purine. Surely you can not allow yourself a low-purine diet in CF, because additionally you also have to pay attention that the weight is not decreasing rapidly… Many thanks in advance.
- 14.12.2007
- Ventilation system
- Hello, At the moment we are planning to build a one-family house. In the meantime our daughter, 14 months old, has been diagnosed with CF. Therefore the question arises, what we have to take into account concerning the building of our new house. So far, we only got the advice to install wash-basins without overflow etc. Because of the way houses are built today (the house is totally isolated against the outside), it is recommended to install a ventilation system (not air-conditioning), which exchanges the air automatically. Is there the danger of getting Pseudomonas bacteria into such a system multiplying in there (probably because of condensating water)?
- 14.12.2007
- CF at the age of 58 years and with 100kg
- When I was 16 I have been diagnosed with CF after a sweat test in a specialized hospital for lung diseases in Bremen. My brother died of this disease at the age of 38 years. As I have been in an extraordinary good condition until 2 years ago, I did not bother about this disease. At the end of the year 2004 and beginning of the year 2005 the problems occurred. I have been admitted to the hospital because I had only 50% oxygen in my blood. At that time point I had been living in Spain for already 15 years and since then I have been started on a therapy against asthma. I tried to persuade the physicians that I was suffering from CF, however they only laughed at me. They said I was too old and too big for this disease. They gave me cortisone and that was it . Therefore I had to bite the bullet and did a DNA-analysis on my costs. Of course I do hardly understand the result. In addition, I do not have the possibility to contact a CF specialist here in Spain, as there is only one children hospital near Valencia and they don’t take me there. So this is my request to you: what does the following mutations mean: : S549N, S549R, R553X, G551D, V520F, I507del, F508 del, 3876 delA, 1717-1G--A, G542X, R560T, 3120+1G--A, A455E, R117H, 394deITT,2183AA--G, 2148delA, 2789+5G--A, 1898+1G--A, 621+1G--T, 711+1G--T, G85E, R347P, R347H, I148T, W1282X, R334W, 1078delT, 3849+10kbC--T, R1162X, N3656delC, 3905insT und polimorfismo: 5/7/9T. I would be very grateful for your help. I would like very much to quit the cortisone therapy and to prove the normal lung physicians that I am not suffering of asthma. Please help me….Many thanks.
- 12.12.2007
- Smoking with CF
- My boyfriend (26) suffers from CF and he smokes a lot and he doesn’t try very hard to live a healthy way of live; probably due to his view of live influenced by the illness. Probably I could give the answer myself, but it is obvious that smoking etc. worsens the situation a lot, or not?
- 12.12.2007
- Hygiene of Pseudomonas
- Taps and Pseudomonas
- 12.12.2007
- Dealing with dogs / pets
- Without doubt this is a frequently asked question, however I am not sure about this: is it advisable to avoid dealing with dogs? Which kind of pets are advisable for CF-patients anyhow?
- 12.12.2007
- Sweat test
- Hello, a sweat test has been done to my daughter. The result was 61 borderline. What does that mean?
- 07.12.2007
- Factor V-deficiency
- Dear CF-team, My doctor in charge said once to me that I had a factor V-deficiency…can somebody explain to me what that means, it must have something to do with the blood….Do I have blood that is to thin or to thick? I would be happy to get a more detailed explanation from you. Yours sincerely,
- 07.12.2007