Topics

Risk concerning a person with chronic bronchitis
Hello, I want to know what is the risk to encounter a person with chronic bronchitis and who is under oxygen in the hall of the building every day. Is there a risk of transmission of germs?
24.06.2014
Playdough
Hello, Can a CF child of 20 months use playdough if he respects conventional hygiene instructions? Is there a particular indication against? Thank you in advance.
24.06.2014
Persistent cough
My son is 6 years old. He was examined by Dr. Doudounakis about a year ago, as he had repeating episodes of productive cough and because his sweat seemed very salty to me. We did a sweat test and the result was 26. Last winter we had some episodes of moderate cough. For three weeks no he has a different, rough and usually productive cough nearly every hour day and night. He sneezed once and he secreted an especially sticky and thick mucus. I am starting to fear about the possibility of CF again. What can I do? Should I see a pediatric pneumologist? Should I repeat the sweat test? His growth is beneath average but within the normal curves. He has a mild constipation but otherwise he is alright. The oxygen in the blood is 99%. He is always active and exercises normally. He sweats excessively during the day and during sleep.
24.06.2014
Insectarium and Aquarium
Hello, Can CF children go in an insectarium and aquarium in zoos? Thank you
24.06.2014
The qestion about MRSA to Dr Deirdre Gilpin
The qestion about MRSA to Dr Deirdre Gilpin As i read MRSA doesnt trasmit throu air- it only hapen when person has lung disaes MRSA is usually not spread through the air like the common cold or flu virus, unless a person has MRSA pneumonia and is coughing http://www.webmd.com/skin-problems-and-treatments/tc/methicillin-resistant-staphylococcus-aureus-mrsa-overview So it means that i can not get MRSA from air As was writen here !! In this case doctor metined - when you have MRSA lung disease - it could be spread throgh air !! YES ?? It is possible for people who have MRSA (CF or non-CF) to pass it to household contacts or to people with whom they have close contact- even pets!- and recent studies have suggested that MRSA can be spread from the respiratory tract by coughing, sneezing and kissing. Partners of people with MRSA are at increased risk of transmission, probably because of increased bodily contact1. However, unless those contacts have a medical condition, its not likely that they would develop an infection but there is a chance that they become colonized with MRSA. This colonization may well be short-lived, but might be long enough to pass it back to the person with CF- this is particularly a problem if the person with CF is undergoing decolonization (i.e. a course of antibiotics designed to get rid of the MRSA). In order to avoid a cycle of colonization being established, it would be important to consider some important, but simple, infection control measures2. Regular showering using a medicated wash, containing chlorhexidine and handwashing, particularly after coughing or sneezing, by all household contacts may reduce the risk of colonization- alcohol based hand rubs may be particularly useful in this case. In addition, regular changing of bed linen and bed clothes may cut down the risk of MRSA spread.
24.06.2014
Need for help(assistant) for a diagnosis on a 15-year-old child
Question hello, me you already have to put 2 questions for my 14-year-old son but not received of msg from you!! In other has this day the paediatrician who take care of him vien with leaving in another hospital then about one d other is going to take care of him all what j knew before his(her,its) depart c is that by telephone she(it) my said that aparament he(it) and negative for the muco he(it) wait for the confirmation by mail of the next day on the other hand she(it) not said that he(it) had a pancreatic insufissance and a quil go cross(spend) d other examinations but has this day not d other answers has all my questions I am lost!!!! Not way(means) to join(contact) the new paediatrician!! Aparament she(it) na not still acquainted with its file(case)!! Even by e-mail no answer!! Can you tell me is what conssaiquence d an insufissance
24.06.2014
Flight travel and blocked nose
Dear experts, we are flying to Florida (9 hours) with our daughter (10 years old). She has a blocked nose for a longer time, that is treated with the PariSinus® device and nasal shower and nasal cortinsone. She always has great pain during landing. Can one do even more? Is such a long air travel too risky, then? Many thanks for your answer.
24.06.2014
Narrowing with colistin inhalation
Dear expert team, as a female CF patient and an asthma patient with colonization of two strains of Pseudomonas (mucoid), I inhale every second month Cayston® (aztreonam), as I only hardly tolerate the other antibiotics for inhalation. In the interval-free month I got due to a cold ciprofloxacin 750mg 2 times a day for 3 weeks. In the third week a severe pneumonia occurred that had to be treated with an i.v. course for 1 month. My question is now: would it make more sense to inhale alternately Cayston® and colistin? Does colistin have a positive effect against an infection even if it leads to a narrowing and the FEV1 is a bit worse or does it harm more in this case? Are there different products for tobramycin, that are better tolerable? Many thanks for your help, Best regards, S.
24.06.2014
Camping holidays in spain
Are there hygienic concerns in case of a stay in a camping van on a campground in south Europe? Our son is 13 years old and has CF. Family B.
24.06.2014
Chance of CF for a fetus
Ι am in my 22nd week of pregnancy and the fetus was diagnosed with hyperechogenic bowel grade II. I did not have any bleeding during my pregnancy. After the recommendation of my gynecologist I did an amniocentesis and I and my partner gave a blood sample. The amniotic fluid and our blood was checked for 75% of CF mutations and all the results were negative. What are the chances of the baby having CF? Do you think we should do any further checking for a larger percentage of CF mutations, or the tests we already did provide adequate “safety”?
03.06.2014
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