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- ABPA_Aspergillus
- accompanying diseases
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Topics
- Occurrence possible only at adult age?
- Is it possible that it occurs only at adult age (38) with symptoms in the mornings with cough until nearly vomiting, over the day dry cough, x-ray of the thorax without pathological finding, loss of weight, blood values and allergy test all without pathological findings, no other findings, improvement during stay in the mountains?
- 26.05.2014
- Tobi® and nebulizer
- Hello, which nebulizer is suitable for TOBI® (tobramycin inhalation solution)? According to the leaflet, the LC-Plus nebulizer should be taken. Is this absolutely necessary or can one also take standard nebulizers respecitvely is the eFlow also suitable? Many thanks for your answer.
- 26.05.2014
- Oxygen?
- Hello, My 10-year-old son has a very average saturation (91-92). I would like to know what are the criteria for oxygen therapy? Thank you in advance.
- 20.05.2014
- Carrier of F1052V and husband negative for 90% of mutations
- I am 17 weeks pregnant. During the 13th week of pregnancy I and my husband were tested for the 90% of CF mutations at Horemion Lab. Today I was informed that I carry the F1052V mutation, whereas my husband tested negative for the 90% of CF mutations. Do you thing that we should check the other 5% of mutations in my husband, or are we OK?
- 20.05.2014
- Possibility of CF - DF508 traced
- Τhe embryo was found to carry the DF508 mutation. I and my husband were tested and it turned out that the DF508 mutation is also carried by my husband. We expect my results (95% of CF mutations checked). We were informed that in case I am found to carry one other mutation, the embryo must be checked again to ascertain if it is a simple carrier of DF508, or if it suffers from CF. a) In case that the embryo has CF can the pregrancy be terminated? b) In case I do not carry any mutation (95% check), what are the chances for the embryo to have CF due to the 5% of the unchecked mutations?
- 20.05.2014
- Stays in hospital (continued)
- Hello, I don't really understand your answer to my question because I thought my son could catch Pseudomonas aeruginosa or other resistant bacteria in hospital (because it's a place where bacteria are present) and that the recommendations of wearing masks were adressed to the overall hospital staff even though my son is only MRSA infected? Indeed, if the doctor is seeing a patient who has Pseudomonas, he can have one himself and pass it to my son ... Can you please explain to me why there are no recommendations if he has no specific resistant bacteria? Thank you
- 19.05.2014
- Persistent diarrhea in babies
- My 13 month-old baby girl was reported suffering from a moderate form of cystic fibrosis since her 2nd month. She has food allergies and frequent constipation since birth. Stool analysis did not reveal any pancreatic problem, from what I understand. But today, she has diarrhea since a week. Not only the stools are soft or liquid, but they contain a lot of mucus! Sometimes, diarrheas are only composed with mucus. As she is is my first baby, I do not know the difference between symptoms and normality. Does the presence of mucus in the stool is found in other healthy babies or is it really significant for cystic fibrosis?
- 19.05.2014
- Looking for a physiotherapist in Portugal (Braga)
- Hello, Mother of a little 3 and a half year-old CF girl, I would like to know if anyone knows one or more qualified physiotherapists in the field of CF in the region of Braga, in Portugal (we will go this summer). Thank you in advance ...
- 19.05.2014
- Henhouse
- Hello Can we have a small henhouse with 2 hens in our garden? Thank you
- 19.05.2014
- Pancreatic atrophy
- Hello, the conclusions of the last MRI performed in January 4, 2014 shows = "slight increase of the cystadenoma size with no change of the pseudo solid portion of the pancreatic head, increase in dilatation of the main pancreatic upstream duct and pancreatic atrophy". Elastase value (April 17, 2013) was 543 μg/g. In the light of these results and findings of MRI in 2014, I am wondering if I need a treatment for pancreatic insufficiency. I am very limited in my diet, fats tend to be poor digestibility and however I have no weight loss, no pain. Thank you for your review. Best regards
- 19.05.2014
