User login
Enter your username and password here in order to log in on the website:
Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- MDMA and E
- Hi there, I wondered if you could please tell me about the effects of MDMA and E from a systems perspective on a person that has cystic fibrosis or if there were any links to literature/information handouts anywhere? I am a health professional that has recently been asked this by an adolescent child who has been using them and we are trying to support them to NOT be using them by providing up to date scientific information but have found it difficult to find this information anywhere. Thank you.
- 08.04.2014
- query - carrier
- Dear Sirs I sent a question to the cystic fibrosis organisation and they directed me onto you as it was medical question. I have just found out that myself and my sister are carriers of the cystic fibrosis gene only and do not actually have it. I wanted to know if it was true that if you are a carrier you can also show some slight symptoms of CF with lung problems etc? My sister has severe asthma (COPD) and i have asthma also and always cough a lot and have a lot of flem/mucus (sticky gunky) that comes up. Sorry to be graphic. I have read a lot of places and forums online where people say that you can have symptoms or slight symptoms show and some sites say no. I also read some scientific facts somewhere that there is more and more evidence showing this with patients coming forward? I would be very greatful if you would be able to help me with this matter?
- 08.04.2014
- Manuka Honey
- I have read a paper explaining that Manuka honey could not work in CF patients because it can not be inhaled and when taken orally, it would not reach the lung. I am not scientist, hence perpaps this is a silly question, but why can manuka honey not reach the lung when taken orally, but oral antibiotics can?
- 08.04.2014
- Swimming
- My son (aged 7) is due to start swimming with school in January. The pool used by the school is not chlorinated but the water is cleaned by ultra-violet light. Would this pose any infection risk for someone with CF? Thank you.
- 08.04.2014
- Room Temperature
- What is the BEST room temperature for a person with CF?
- 08.04.2014
- Can NaCL infusion help CF patients
- Dear Sir/Madam, I am a mother of a child with CF. Maybe my question is stupid as I do not have medical background, but I am wondering can usage of Na Cl infusion through the blood once a week help CF patients in term of bringing salt through the blood into lungs, pancreas, stomack, etc.? This might help nutrition and braking up the mucus or not?
- 08.04.2014
- infant cf treatment with colistin and food diversification
- Dear doctors, My 4 months old daughter has been diagnosed with cf one month ago. I would kindly like to ask for your opinion for the following: -she cultured positive the second time with E-coli in a tracheal aspirate. We tried to eradicate with inhaled gentamicin (5 days) and oral biseptol (3 days) for the first time without any success. Now her doctor recommended inhaled Colistin for one month. 1.Is this current procedure for cf infants to be recommended Colistin? Sounds agressive. I am not convinced of the need for this particular case, therefore my concern. E-coli in our case is very sensitve to a lot of other antibiotics on the antibiogram. 2.Is e-coli dangerous, does it predict future contamination with Pseudomonas Aeruginosa as SA does? Thank you, A.
- 08.04.2014
- genetic test
- My son aged 11 years is diagnosed with CF since infancy, he was diagnosed at 2 months. He has Pulmozyme®, pancreatic enzymes, vitamins, etc. With about 4 years of age he did the genetic test in Cluj-heterozygous for F508del, but we don't know if the other mutation was identified. I would like to know if there is any possibility to repeat this genetic test (for free?), for G551D mutation. Is the Ivacaftor treatment available in Romania? I know it is very expensive and it is used in the UK, USA, for G551D mutation.
- 08.04.2014
- sweat test
- Hello, We have a little boy, 2 years and 6 months old. From the age of two years, when he starts going in the kindergarten, he starts to get colds. In October he had an adenotomy. We have done the genetic test for 32 CF genetic mutations, but it was negative. I want to do a sweat test but now he is under homeopathic treatment including Teucrium Marum and nux vomica 9CH and 30 ch (recommended by a homeopathy specialist). It is possible that the sweat test result will be influenced by these substances? Thank you,
- 08.04.2014
- Pseudomonas aeruginosa
- Hello, My 3 old-year daughter is colonized with Pseudomonas aeruginosa for 1 year. She is treated by intravenous antibiotics (ceftazidime + tobramycine) every 3 months. May the Pseudomonas aeruginosa become resistant to this treatment ? If yes, how long is it to be resistant? In case of resistance, is it life-threatening? Thanks for your response.
- 08.04.2014
