Topics

how long does it take to do a genetic screening for cystic fibrosis?
Hello, I would like to know the time necessary to do genetic testing for cystic fibrosis. I am a cystic fibrosis woman and thinking about a child, my friend must have a screening test. So, I would like to know how long does it take to have results. Thank you
24.03.2014
Cystic Fibrosis
How does Cystic Fibrosis affect lungs and as a consequence the respiration?
24.03.2014
Travelling with CF to Indonesia
I have read a question about travelling with cystic fibrosis on the forum. In an answer from 2009 is was inadvisable to travel to South East Asia because of the Burkholderia pseudomallei bacterium. If available, I would like to have an up-to-date answer to my specific question. We have planned a trip to Indonesia end of August (Bali and Lombok). Is this bacterium still / also present in this region? We stay in comfortable clean hotels.
24.03.2014
Moving to the USA
Hello, I am 30 years old, I am a School teacher and I would like to teach in the USA. I will be in the status of expatriates or I'll be sent for national education. How will my health care be supported there? What should I do for my care is fully supported? Thank you in advance for your Response, J.
24.03.2014
Pregnancy and birth
What is the recommended birth method for a CFer with good lung function (71%) and well controlled gestational diabetes with an average sized baby expected? Vaginal or section? Thanks
24.03.2014
Delta F508 and 2184insA
What percentage of the CF population has this genetic mutation? What class is it? What are its symptoms usually look like?
24.03.2014
Bronchiectasis
My 14 year old son with CF was just told he has Bronchiectasis; is it reversible? The drs aren't doing anything about it?
24.03.2014
hot tubs, jacuzzi, spa baths
We need to explain to friends why our grandsons (11 and 14) are not allowed to go into hot tubs, jacuzzis, spa baths etc. Please could you recommend research documents (if any) or any written material to help us put this danger to our grandsons over clearly to anyone who may have care for them. Thank you - jennifer mcneil
24.03.2014
nutrition in infant with cf
Dear doctors, my 4 months old daughter had been recently diagnosed with cf. Sheis pancreatic insufficient, as diagnosed by her doctor. Kindly advise on the following: 1. her stools are still very loose, fatty and smelly regardless she takes pancreatic enzymes with every meal. Since enzymes intake, she started to gain weight and is constantly growing every week. Will she always have fatty stools, is this normal while she takes pancreatic enzymes? 2. when can I start to diversify her food, is this recommended for infants with cf? Thank you, A.
24.03.2014
DNA test/risk of passing CF on to children
Hello, me and my wife plan to have children. As a CF causing mutation has already been detected in my DNA, is there a high risk that our children will come down with CF? My wife was born on the Philipinnes, I am European, and it is very hard to find information regarding the relevant mutation that should be analyzed in her DNA - does it make sense to check her whole CTFR gene? Thanks from Austria T.
24.03.2014
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