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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
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- diagnostics
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- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
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- hepatobiliary disease
- hygiene
- i.v.-lines
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- lung
- microbiology
- miscellaneous
- modulator therapy
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- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
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Topics
- Pseudomonas aeruginosa
- Is there a mean age of primo-colonization with Pseudomonas aeruginosa for CF patients? After primo-colonization, is it possible to eradicate Pseudomonas for a long period of time or should patients expect chronic Pseudomonas infection immediately after primo-colonization? Thank you.
- 24.03.2014
- Portocath
- Is there someone who focusses on finding access to vascular system after some veins have been blocked and portocath needs to be replaced
- 24.03.2014
- Carriers
- My husband and I just found out through gene sequencing that I am a carrier of deltaF508 and he is a carrier of 5T. He testing negative in every way except the 5t. What are the odds of our children having CF? To me the odds aren't clear, our councilor says they could have a "mild" form of CF or infertility in a male. Thank you
- 24.03.2014
- CF mutations
- I am a mother to a girl with F508del/CFTRdele2,3 (21kb) mutations. She was diagnosed at 2 months old. Now she is 5 and doing very well. Only 2 lung infections, no P.a cultured. Still I am concerned as I read both of the mutations are clasified as "severe". Does it mean that the progress of the desease may be faster, harder? Can you tell how sensitive is she to culture CF bacteria (like P.a.)? Thank you in advance.
- 24.03.2014
- Duct heating system?
- Does anyone know if this type of heating system is a threat to those with C.F.?
- 24.03.2014
- hot tubs, jacuzzi, spa baths
- Could I get recent publications/research on the use of hot tubs etc for cf teenagers please?
- 24.03.2014
- CF diagnostics
- My 3 and half old son suffer of often breathing infects and long lasting cough.Usually dry cough time to time moist cough. Is possible to have CF when he went through a neonatal screening on CF in 2010 and chlorid swap test two years ago?. Both with negative results.our doctor advices to do chlorid test again. The result of the test was 20. Thanks
- 24.03.2014
- CF in blood work but no symptoms
- About 12 years ago it was found that i had full blown CF according to my bloods but i've never had any symptoms - this was found as i was trying to do egg donation. I am now wondering if this is common or whether it is rare and somebody may be interested in it? Both my parents were then tested and found to be carriers obvioulsy. My brother has not been tested. Many thanks V.
- 24.03.2014
- DNase
- I've just come back from a routine clinic and the consultant wants to put my son (aged 6) on DNase daily for evermore. Do you have any feedback about this? Or still have the feature ask the expert? Apparently they use it in the USA and Europe from 6 or younger, and they feel that lung function is improved for the long-term. Obviously this is a huge decision for me, and I don't want to make a snap decision. My son's lung function is generally good, usually has half dozen courses of antibiotics annually, and has only been admitted for IVs once when he was 2. I hope you can advise accordingly on how evorn-cf feels about it.
- 24.03.2014
- Aquagenic Wrinkling of Palms
- My daughter (5 y.o.; F508del/CFTR dele2,3) seems to have Aquagenic wrinkling of Palms. What does this condition mean? IS it somehow dangerous? Should it be treated?
- 24.03.2014
