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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
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- covid-19
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- ENT
- general aspects
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- hepatobiliary disease
- hygiene
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- miscellaneous
- modulator therapy
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- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
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Topics
- Transmission
- Is it contagious?
- 03.02.2014
- ISET INSERM method
- Hello I have contacted by phone the press service of INSERM [institue national de la santé et de la recherche médicale = French national institute for health and medical research] who planned, before the end of the year, the marketing of a diagnosis test. I have been told that: - this test has been transferred to the pharmaceutical company Sanofi Pasteur - it is not free, but if I have a prescription I could get it Sanofi Pasteur doesn’t communicate with an individual. I asked the association Vaincre la mucoviscidose to perform an inquiry for me. I have no solution and ask for help. I’m surprised of the silence of the association regarding this test and the answer of my question posted at 16 jun disappointed me. I hope you will give me an answer. Thank you
- 03.02.2014
- Natural disinfectant
- Being a little tired of using chemical household products very regularly (maybe too regularly) since the birth of my son with cystic fibrosis, I decided to make my own ecological disinfectant with bicarbonate of soda, white vinegar, HE lemon and of tea tree and water. Is this mixture enough disinfecting? The water it contains, can it be taken as stagnant water or is the disinfecting the role of the other used products stronger? How long may I keep my mixture? Thank you
- 03.02.2014
- MIGLUSTAT
- Hello Do you have any news regarding research about MIGLUSTAT? Thank you.
- 03.02.2014
- Fat Diet
- Hello, I am mother of a little boy with Cystic Fibrosis. I was just wondering if eating so fat could not be bad for his health. Indeed, to date there are only a few adults with cystic fibrosis so they are not affected by cholesterol, clogged arteries ... (what happens when you eat too much fat?) and there is little perspective on the evolution of the disease in adults? Is it not dangerous in the long term eating too fat? Are there studies on this? Thank you.
- 03.02.2014
- Indoor playground
- As being mother of a little girl (16 months old) with CF, I would like to show her the joys of indoor playgrounds (ball pit, slides), but I would like to know if it is possible and if there is a problem with bacteria? Thanks
- 03.02.2014
- Cystic fibrosis and general anesthesia
- Hello, My 6-year-old son has to undergo a very minor dental operation. It was initially planned under general anesthesia. But the day of the intervention, one of the anaesthetists opposed the general anesthesia by precaution due to cystic fibrosis. I specify that the CF Center had validated the initial decision of general anesthesia and that the respiratory state of my son is completely satisfactory as well as his general health. I don't understand this reluctance and I wonder how an operation in emergency situation would have been managed... In other words: is cystic fibrosis a contraindication to general anesthesia? Thank you for informing me. Cordially
- 03.02.2014
- Strong cough at night
- Hello, I have a 6-year-old daughter with CF and she is coughing for nearly 2 months, at day time less and at night time very much. What can I do for relief? She is taking antibiotics for the whole year with only few pauses, thus steadily. From the cough blocker noscapin she gets stomach ache. Many thanks for your answer, I am just again sitting at her bedside.... Many greetings! H. H.
- 03.02.2014
- Cayston®, hemoptysis?
- My son, 33, is told to inhale Cayston® (aztreonam) and has worries after reading the drug leaflet. He has had 3 times hemoptysis with years intervals inbetween, 2 times he had to be admitted to hospital due to this, whereby it was not necessary to intervene in the end. It is not written in the drug leaflet, how frequent this side effect is and if it can also come to dangerous hemoptysis. Can he feel secure in case a hemoptysis occurs and he stops inhaling? With a thank you and best regards, B. S.
- 03.02.2014
- Visit of indoor playground / danger from strong fan of jumping castles
- Dear expert team, is there any danger from the fan of a jumping castle? Partly completely closed "rooms" with strong fan/ air pressure. I have already tried to get some information myself, however do not find any answer. My son (CF patient, 5 years old) is invited to a birthday party, which should take place on an indoor playground, with numerous jumping castles (open and closed!! rooms). Can I let my son participate without any worries? Many thanks for your answer!
- 03.02.2014
