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- ABPA_Aspergillus
- accompanying diseases
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Topics
- bottle of mineral water
- hello I want to know how long can a bottle of mineral water be kept without risk? Thank you
- 16.12.2013
- Role of CFTR protein
- Hello, Can you explain in great details the mechanisms of antimicrobial immune defense in CF and the role of CFTR in these mechanisms. Thank you for your answers
- 11.12.2013
- Bronchitol® and NaCl 5.85%
- Dear expert team, I (26, CF, FEV1 about 65%) inhale for years a lot with NaCl 5.85% (20 minutes in the morning, 30 minutes in the afternoon and 30 minutes in the evening) as I can cough up my suptum very well with this and I breathe easier after this. For a few months, I inhale after that in the morning and evening additionally 10 capsules Bronchitol® (Mannitol) each time, by what I can then also cough up again. My physiotherapist draw my attention to the point that Bronchitol® would make the inhalation with NaCl needless, as the Bronchitol® alone would losen as much sputum as the combination with NaCl 5.85%. What is your opinion about this? I do not dare to try it, as I have worries, that I would do worse without NaCl. Many thanks for your help in advance. Many greetings, L.
- 11.12.2013
- Spouse or donor sperm
- My boyfriend has cystic fibrosis. We want to have children. We proceeded to a semen analysis for him and for me a genetic test. For me, I do not have the CF gene. For him, we will have to appeal to an artificial insemination or IVF. But we would like to know if it has to be obligatory with a sperm donor or can be with the husband's sperm?
- 11.12.2013
- Regular i.v. therapy?
- Hello, my son is 6 years old and has the Pseudomonas already for about 4 years. In the year 2012, 2 i.v. therapies had been done, as he did not well either. This year he has stayed free of infections and has no restrictions. The Pseudomonas has not beed detected anymore in the throat swab, either. For control reasons, the antibody titer has again been tested. This is however higher than before the i.v. therapies last year. Now we got differing statements concerning the i.v. therapy. We have been told, that the Pseudmonas is chronic and the i.v. courses have to be repeated regularly. Another time we have been told, that we will wait, as he is doing well at the moment. What is better? Furthermore, I would like to know which investigations would make sense? My son has never had a CT or MRI, only normal x-ray investigations. I have heard several times that this would be standard. I would be very glad about an answer. Yours sincerely,
- 11.12.2013
- footbath
- Hello, I noticed that in response to a question about pools you recommend avoiding the footbath. Could you tell me more? Can my CF child rinse his feet when he leaves the pool in the footbath, were there is a product (I guess disinfectant) to prevent warts? What should really be avoided when going to the pool? It's a boy, he has short hair, is it dangerous to use the hair dryer ? A big thank you in advance for your answers and for all the time you spend for us. Yours
- 11.12.2013
- climbing indoor
- Hello, My 7-year-old daughter would like to practise climbing. We went in a room to learn it and we noticed that the air was full of magnesia. The air is renewed every night but the magnesia is very volatile and there remains always on the grips. I did not find information about the possible impact of the magnesia for a patient with cystic fibrosis and the question was apparently never asked on ECORN. Do you think that the practice of the indoor climbing is possible? Thank you in advance for your answer
- 10.12.2013
- Milk and milk derivatives
- Hello, for a child with high sputum production, is it better to avoid or to forbid cow's milk and its derivatives (cheese - yogurt). I've heard that it promotes the production of mucus. Thank you for your reply
- 09.12.2013
- Cystic Fibrosis
- Hello, after a pancreatitis, my 10- year-old son has been diagnosed with cystic fibrosis. He never had bronchitis. Sweat tests values are 55 and 50. The N1303K mutation was identified. His lungs, will they necessarily be damaged? Can people live with pancreatic insufficiency? Thank you very much for your information. K.
- 09.12.2013
- Daily colored sputum
- Hello, my 5 year old son has colored sputum (green - yellow) daily. Is it due to chronic colonization by staph? He takes Pulmozyme® daily and has respiratory physiotherapy every day also. He has daily sputum that we are trying to evacuate every day. Does this mucus affect his lungs? Even after antibiotic treatment, it's always coming back. What can we do to help him more? Thank you for your reply.
- 09.12.2013
