User login
Enter your username and password here in order to log in on the website:
Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- hedge of shrubs
- We have just fitted out a house with our 16-month-old son with cystic fibrosis. We want to plant a hedge around the garden. Do we have to avoid some types of plants or shrubs? Thank you
- 11.11.2013
- Daughters CF test
- We recently received a "presumptive positive" result for our newborn daughter's CF test, with a result of "Heterozygous (R117H, 7T/7T)" and an IRT level of 52. Having read a little about this specific mutation, it seems possible that she might simply be a carrier, and may never show symptoms. Can you please clarify for me: what does Heterozygous (R117H, 7T/7T) indicate?
- 11.11.2013
- R117H 7T/7T Heterozygous
- Hello - My 2-week old daughter is heterozygous R117H 7T/7T. What are her risks of having CF? IRT is low, and sweat test is coming next week. Thank you.
- 11.11.2013
- R117H
- My husband was recently diagnosed positive for one copy of the R117H mutation (R117H heterozygote, homozygous for 7T). He was negative for the 5T variant. We plan to have genetic counseling. What exactly does this mean for him and for us if we have children?
- 11.11.2013
- Risk of infection at the skating-rink?
- Hello Does the ice of a skating-rink contain germs? Or more simply, is skating-rink prohibited or recommended? Thank you very much
- 11.11.2013
- vacuum cleaner
- Hello What do you think about vacuum cleaners like "dyson" type which use is recommended for people suffering from allergy and asthma, and for patients with cystic fibrosis? A priori this type of vacuum cleaner has a very good filter and a cyclonic suction to separate the dust and germs from the air, rejecting so cleaner air... What do you think? There is even a specific range of allergies with antibacterial filters... We do not want to make any mistakes in our purchase to ensure the safety of our children. Vacuum cleaners with bags don't seem hygienic because a bag accumulates bacteria and spores and rejects them in the air during daily use. Thanks for your reply.
- 11.11.2013
- liquid soap
- Hello, Our CF center recommends the use of liquid soap for washing hands of the family and physiotherapists at home for our daughter. When charging distributors, there is always a non-used product stagnating at the bottom. Could the properties of the soap be altered? Could the risk of contamination by the possible development of germs or bacteria be dangerous? Do you have any recommendations to inform us about best practices? With many thanks for your help and availability.
- 11.11.2013
- cf
- I have a 4 year and 9 months old daughter. She is coughing several times a day, especially in the first part of the day. She was diagnosed with asthma 2 years ago and does not respond well to the treatment. The sweat test and the value of the test was 55mmol/L and 57mmol/L. Is it possible for her to have Cystic fibrosis?
- 06.11.2013
- sweat test
- Hello, If the value of the sweat test is 55mmol/L- 57mmol/L, is it possible that the child is a CF carrier without developing the disease?
- 06.11.2013
- cystic fibrosis
- My daughter made a sweat test and had a test result of 61mmol/L, is it possible for her to have Cystic fibrosis? Thank you
- 06.11.2013
