Topics

17-month-old son with CF, Delta F508
Hello, My son currently has an infection (streptococcus pneumoniae in the throat swab). He has been prescribed Pancef®/cefixime (dosage: 1 x 5 ml, with probiotics 1.5 hours before intake). He weighs 11 kg. Could you provide advice?
22.10.2013
CF and sailing yacht?
Hello, We are thinking about buying a small yacht (sailboat) for our vacations. However, we have a daughter (5 years old) with CF. We are a bit worried about the bacterial load in the water tanks used for showering, washing, etc. Is it sufficient to put chlorine additives or other, similar additives intended for this use into these tanks, or do you assess the risk of infection with problem germs as high? What about the pipes on a sailboat – could they potentially also be contaminated with germs? Many thanks.
22.10.2013
Cystic Fibrosis
Why is cystic fibrosis more common in light-skinned than in dark-skinned people?
22.10.2013
Contraception
Hello, I (female, 18 years old) am currently taking colistin (inhalation) and co-trimoxazole (orally). I am now a bit confused as to the effects these two antibiotics may have on my contraception (NuvaRing®). Will the contraception still be fully effective, or less effective, or not at effective at all? Furthermore, I just completed my i.v. therapy with tobramycin and ceftazidime two weeks ago; can that still have any influence? Many thanks in advance and kind regards.
22.10.2013
sweat test for a baby at the age of 6 months and 20 days
dear Team! My son (6 months old) will have in 2 weeks a sweat test because he suffers from bronchitis very often (5 times during 2 last months) and has a very salty forehead. On the day of testing he will be 6 months and 20 days old? What are the normal results for this age? 39 or 29??? Thank you veru much in advance!!!!!
22.10.2013
Aspergillus antibodies
Hello, our child’s (7 years old, CF) latest blood test showed aspergillus antibodies. What does that mean, and can we do something about it? Many thanks in advance!
21.10.2013
Ichtyosis and CF
Son suffers from ichtyosis, sweat test could not be performed, nasal test either. Genetic test has been done, however no gene has been found. Result has been provided with a question mark. Son has also diabetes 1 and celiac disease (biopsy), additionally lack of IgA and lactose-fructose intolerance (breathing test), he is underweight. CF is mentioned in almost all reports, especially as he has had as an infant pneumonias, permanent spastic bronchitis, as well as pertussis, he has "taken" all childhood diseases. At meals he takes enzymes, without, his digestive problems are even bigger (fatty stool etc.). Pancreatic insufficiency has not been detected during an investigation of the stool. In spite of this, is there the possiblity of having CF?
21.10.2013
Bleach
Does bleach (household) kill bacteria, etc., on contact, or must the surface remain wet for a certain amount of time? Thanks.
21.10.2013
hyperinflation
Hello, my son's chest xray at age 6.5 months showed "hyperinflation", which his CF doctor described as too much air in the lungs? I was hoping for anymore information on this condition and how it relates to CF. Is it cause for concern that he is such a young age with hyperinflation? Thank you so much.
21.10.2013
F508del and G542X
My 4 months old son has been diagnosed with CF. He has the above mentioned mutations. How severe is this combination? I'm extremely worried about what might happen to him one day. Thank you.
21.10.2013
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