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- accompanying diseases
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Topics
- synchronized swimming
- My 9 year-old CF daughter practices synchronized swimming for the first year. After discussion with the CF centre, the doctor told me that there were no problems if precautions for public pools were respected. However, I wonder if other children or people practice the sport and know their experiences and recommendations.
- 21.10.2013
- Positive effect of thermal water
- Dear expert team, We live close to a thermal bath that advertises, among other things, the mucolytic and curative effects of its thermal water as well as a brine floating pool and brine inhalation. Could regular visits be beneficial to our daughter (2 years old, CF)? Or would the warm, humid climate rather bring forth germs? Many thanks and kind regards!
- 21.10.2013
- colloidal silver
- Hello We learned that colloidal silver is highly effective against bacteria and viruses, in the environment and also as remedy for infections. What do you think? Is there any research performed on that topic? Why does nobody talk about the colloidal silver, sometimes considered "miraculous"? Thank you, Best regards.
- 21.10.2013
- High blood levels of triglycerids
- Hello, I am 32 years old, and was diagnosed with bilateral absence of the vas deferens (CBAVD). I am heterozygous for the DF508 mutation (second possible mutation unidentified) and "suffering" from chronic sinusitis. My sweat test, if I understood, ranges in the intermediate values and does not allow a firm diagnosis. I recently conducted routine blood tests which revealed high levels of triglycerides and HDL cholesterol. Can these high values be due to a malfunction of the pancreas due to a "mild" cystic fibrosis? Thank you in advance for your reply and congratulations for this site where clear answers are always made.
- 21.10.2013
- Hypertriglyceridemia
- Hello, I asked a few days ago a question about high levels of triglycerides in the case of an isolated CBAVD (congenital bilateral absence of vas deferens, heterozygous for the DF508 mutation, intermediate sweat test, chronic sinusitis). I realize that I was wrong when I mentioned a high HDL cholesterol level; when checking my results, my HDL cholesterol is not high, but transaminases are. I wanted to know if these high rates could be related to a mild form of cystic fibrosis. Thank you in advance for your answer.
- 21.10.2013
- Drying clothes
- Hello. How long takes the pyo to develop in clothes? My question is, on the one hand, related to the drying of laundry out of the washing machine and, the other in connection with the use of towels and hand towels. What about if you forget the clothes clean but still wet in the dryer? Is there a risk of development of pyo? Thank you for your response.
- 21.10.2013
- fruits and vegetables
- Hello, how well do I have to clean the fruits and vegetables to avoid contact with germs at risk? Is it possible to wash them with chlorinated water and in which concentration? We will soon start food diversification of our baby with cystic fibrosis and we would like to prepare his meals, but whithout risk to bring Pseudomonas aeruginosa at home via the potatoes, leeks and carrots ... We recently tried the frozen vegetables for us and we were embarrassed to find a crunsch in our soup! Because of sand I suppose! What do you recommend? Thank you for your response
- 21.10.2013
- Inhalation in case of resistant Pseudmonas
- My son is 33 years old, mutation genotype deltaF508 and R553x. He has inhaled colistin for decades and now his Pseudomonas germs are resistant. Furthermore I ask myself if it is not possible however, that in case of such a long exposure colistin passes minmally the blood-brain barrier as he reacts so solwly in his verbal communication....I ask myself if the colistin makes sense anymore. Against tobramycin there were resistances since he is 9. At his yearly i.v. therapy he always got ceftazidim in combination with amikacin. There is partly sensibiltiy to aztreonam that would also be possible to inhale and seemingly also to amikacin - that has not been tested at the last antibiogram and he should soon get his next i.v. with tazobactam. Probably Slit amikacin would be a good alternative to inhale - as he has a stop-mutation. I would like to thank you very much in advance for your commitment.
- 21.10.2013
- Stenches in the house
- Hello. My 3 year old daughter has cystic fibrosis. We had a leakage problem last year. And since, we have stenches in the house like smells of sewer. Is there a danger for my daughter? We tried disinfecting sprays without success. The smell comes back. What can we do? Thank you for your answers. Cordially.
- 15.10.2013
- Iron
- Is there a problem to iron with a steam iron the clothes of my child who has cystic fibrosis? There is always a little water in the iron: is the heat sufficient to destroy any germs, bacteria? Thank you for your opinion.
- 15.10.2013
