User login
Enter your username and password here in order to log in on the website:
Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- TSM (triomethoprim/sulfamethoxazole) resistant Staphylococcus
- Does a CF patient's resistant staphylococcus pose a hazard of contagion to a patient with another lung pathology?
- 07.10.2013
- Genetic test
- Hello, My boyfriend has cystic fibrosis. We would like to know wether I am or not a carrier of the mutated gene before considering to have a baby. We looked on the internet and apparently I should do a blood test, but where can this test be done?
- 07.10.2013
- Hormonal contraceptives
- Hello! I (27, female, CF) use for some years a vaginal ring for contraception. My common medication is levofloxacin, azithromycin orally; tobramycin and meropenem every 6 weeks intravenously; Aztreonam and Colistin inhalatively. In addition, I still take amitriptylin low dosage and further drugs (like vitamins, ursodeoxycholic acid and diverse sprays). I have several questions about this: 1. Until now I have chosen the vaginal ring, as it appeared more safe to me due to its independence from the digestive system with regard to the oral antibiotics intake. Would an oral "pill" be as secure? I meet again and again female CF patients who take the normal (and therefore markedly cheaper) pills. Which one would then be especially advisable? 2. Can the fertility of female CF patients be securely tested? Facing the fact that I could also be infertile, it seems questionalbe to me to take hormones for decades. Until now, I regarded the sole usage of condomes to be too insecure. 3. Is there the possibility of getting a hormonal contraceptive covered by the health insurance, in case a pregnancy has definitely to be avoided due to health reasons? In the next transplantation center I have the status "under supervision", all necessary investigations for being listed have been done, at the moment, however, I am fortunately too fit to be listed. Many thanks in advance!
- 07.10.2013
- Nasal spray
- Hello, I would know how many time a nasal spray may be used after the first use. Thanks for your response.
- 07.10.2013
- farm
- I am the mother of a 16-month-old boy with cystic fibrosis, diagnosed at 2 months of age. My parents in law have a farm with cows. There are also large reservoirs with maize and grass to feed the cows. Also horses and dogs are on the farm. What should I pay attention to and what is absolutely not good for him?
- 07.10.2013
- Transplantation
- Hello, What are the risks of lung-liver transplantation for a CF patient? How is life expectancy increased by this? How much time? What are the risks of rejection?
- 07.10.2013
- Life expectancy after lung transplantation
- Hello, I would like to know, what is the life expectancy after a lung transplant? The transplant was done about fifteen years ago. Thank you.
- 30.09.2013
- my life expectation
- Hello ECORN-CF experts, I am 13 years old and I suffer from mild CF. Only my lungs are infected. My liver and other organs are all right. Everywhere I see things on the net about life expectations of 40. I am a normal child and want also a future. What is my life expectation? Gr. Imar
- 30.09.2013
- Salads in bag
- Hello We ask a question about salads in bags in which there is always a little stagnant humidity especially in a plant environment. Do you think it is possible that the Pseudomonas aeruginosa proliferates there and we have to, by precautionary measure, favor whole salads to prepare? Thank you for your answer.
- 30.09.2013
- Contact with a lung transplant recipient
- Hello, the husband of my son’s future nanny has undergone lung transplantation. Is there a risk of transmission of infection between these 2 persons? My son is colonized by Staphylococcus aureus; is this dangerous for the nanny’s husband? And if some day my son will be colonized by Pseudomonas is there a risk of transmission of infection? Do you propose to replace the nanny? I am quite happy with this nanny as she has similar standards of hygiene: regular hand washing, avoiding sick people, no plants, no vases, very frequent disinfection with bleach water... What is your appreciation ?
- 26.09.2013
