User login
Enter your username and password here in order to log in on the website:
Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- farm
- I am the mother of a 16-month-old boy with cystic fibrosis, diagnosed at 2 months of age. My parents in law have a farm with cows. There are also large reservoirs with maize and grass to feed the cows. Also horses and dogs are on the farm. What should I pay attention to and what is absolutely not good for him?
- 07.10.2013
- Transplantation
- Hello, What are the risks of lung-liver transplantation for a CF patient? How is life expectancy increased by this? How much time? What are the risks of rejection?
- 07.10.2013
- Life expectancy after lung transplantation
- Hello, I would like to know, what is the life expectancy after a lung transplant? The transplant was done about fifteen years ago. Thank you.
- 30.09.2013
- my life expectation
- Hello ECORN-CF experts, I am 13 years old and I suffer from mild CF. Only my lungs are infected. My liver and other organs are all right. Everywhere I see things on the net about life expectations of 40. I am a normal child and want also a future. What is my life expectation? Gr. Imar
- 30.09.2013
- Salads in bag
- Hello We ask a question about salads in bags in which there is always a little stagnant humidity especially in a plant environment. Do you think it is possible that the Pseudomonas aeruginosa proliferates there and we have to, by precautionary measure, favor whole salads to prepare? Thank you for your answer.
- 30.09.2013
- Contact with a lung transplant recipient
- Hello, the husband of my son’s future nanny has undergone lung transplantation. Is there a risk of transmission of infection between these 2 persons? My son is colonized by Staphylococcus aureus; is this dangerous for the nanny’s husband? And if some day my son will be colonized by Pseudomonas is there a risk of transmission of infection? Do you propose to replace the nanny? I am quite happy with this nanny as she has similar standards of hygiene: regular hand washing, avoiding sick people, no plants, no vases, very frequent disinfection with bleach water... What is your appreciation ?
- 26.09.2013
- Moving to Dubai (UAE)
- Hello, Is there a risk for our 3-year-old little boy to go off for living in Dubai? Are respiratory physiotherapists available overthere?
- 26.09.2013
- protein breakdown
- Hello, My 17-month-old daughter has CF. She is fine. No airway problems and she grows well. She has a weight above average (11 kg). She eats well. 4 times a day she gets 4 spoons of pancreatic enzymes (20 000 units each time). Sometimes I smell a rotting odor in her regurgitations. I did understand its a result of a bad protein breakdown. Should I rise the dose (she grows well) or could it be the result of not giving creon with certain snacks. E.g. sometimes I give her chips without giving her creon.
- 26.09.2013
- Cystic Fibrosis
- Dear experts, a sweat test has been done with my 6-month-old son. The values were above 60. The test searched for 27 mutations, but nothing was found. What does this mean exactly? He is in Russia for the moment, but he will come to Belgium in October.
- 26.09.2013
- Taking antibiotics
- Hello, I am the father of a child who has cystic fibrosis. I've read that taking vitamins should be rather after swallowing pancreatic enzymes. What about antibiotics? Is it better, is it more effective if taken after swallowing the CREON? Thank you very much.
- 26.09.2013
