User login
Enter your username and password here in order to log in on the website:
Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Moving to Dubai (UAE)
- Hello, Is there a risk for our 3-year-old little boy to go off for living in Dubai? Are respiratory physiotherapists available overthere?
- 26.09.2013
- protein breakdown
- Hello, My 17-month-old daughter has CF. She is fine. No airway problems and she grows well. She has a weight above average (11 kg). She eats well. 4 times a day she gets 4 spoons of pancreatic enzymes (20 000 units each time). Sometimes I smell a rotting odor in her regurgitations. I did understand its a result of a bad protein breakdown. Should I rise the dose (she grows well) or could it be the result of not giving creon with certain snacks. E.g. sometimes I give her chips without giving her creon.
- 26.09.2013
- Cystic Fibrosis
- Dear experts, a sweat test has been done with my 6-month-old son. The values were above 60. The test searched for 27 mutations, but nothing was found. What does this mean exactly? He is in Russia for the moment, but he will come to Belgium in October.
- 26.09.2013
- Taking antibiotics
- Hello, I am the father of a child who has cystic fibrosis. I've read that taking vitamins should be rather after swallowing pancreatic enzymes. What about antibiotics? Is it better, is it more effective if taken after swallowing the CREON? Thank you very much.
- 26.09.2013
- Variant I 1027 T
- I am a mother of two sons who have CF. The reason I am reaching out to you is that my sons' genetic combination is the Delta F508 and I1027T. During my research, I discovered that there are only 41 people worldwide with this particular combination and some of them are in Brittany, France. Therefore, I was encouraged by my CF Center to reach out to individuals in France who may know about this I1027T mutation and what has been successful with it. Please let me know how to access information appropriately about this.
- 26.09.2013
- CF yes or no?
- Hello, my 8-year-old daughter has health problems since birth (croup, bronchitis, pneumonia etc.). She is 119cm tall and weighs 18.5 kg. Allergy tests, blood investigations, bronchoscopy, ciliar diagnostics, x-rays etc. have already been done. She takes Viani 125® (fluticasone and salmeterol) for 3 years, however the infections stay and are treated with antibiotics (already 24 times), betamethasone orally and montelukast. CF has been excluded. Sweat test: 2007 NaCl 24 mmol/l 2011 osmolality 29 mmol/kg, chloride 7 mmol/l, collection volume 95. I have read in the internet that one can suffer from CF in spite of a negative test. What do you recommend? Is there a possibility of CF?
- 26.09.2013
- Polymorphisms
- I am in the 26th week of gestation. My husband was checked for 95% of the CF mutations and only a polymorphism was detected. Is it necessary for me to get checked, or does the polymorphism does not cause any issues, whether or not I am a carrier? Thank you.
- 23.09.2013
- tennis on clay
- Hello, I am the mother of a boy with cystic fibrosis. I play tennis and I also would like to initiate my son to this sport. However, my club includes only clay courts. Is it a danger for him? Would not be better for him to play on Quick surface (asphalt)? Thank you in advance. Cordially
- 23.09.2013
- PCT124 in Greece
- When will the drug that cures the symptoms of the mutations ending in x be available in Greece? I have the mutation G542X. Will the administration of this drug enable me to stop physiotherapy, the drugs for pseudomonas, and will my everyday life become normal? Will I have this, since nothing has been found for my other mutation, 2183AA. I feel different due to all this. I am too young and I have to explain things to other people and I must follow a set course, and if I want to have a good life I must work for it. However, I get disappointed sometimes and bored, my parents become a burden by caring for me so much. I have a good teacher and I study a lot.
- 23.09.2013
- Premature baby and meconium plug
- I gave birth to twin boys at 28 weeks of gestation. After 23 days twin B was submitted to surgery due to meconium ileus. He was fed through IV for two months. He presented with severe cholestasis, which he overcame after two months. 5 days ago we did an ultrasound investigation and he had gallbladder stones. I and my husband were checked for the 75% of the CF mutations with negative results, and the baby was checked two times at the maternity ward with negative results. Today the baby is 6 months old (3 months corrected age), gains weight normally, nearly 1 kilogram/month and has never had a cold. Should he have a sweat test? What are the chances of the test being positive for CF? Could this all be due to the IV feeding?
- 12.09.2013
