Topics

Trip to England
My 16 year old daughter is going to spend two weeks this summer in England in Bournemouth. Is it possible to find a respiratory physiotherapist or will she have to do the physio herself ?
31.07.2013
bath mat
Hello, I would like to know what bath mat would be more hygienic for a little boy with cystic fibrosis? thank you.
30.07.2013
Vacation in Italy
Hello, We are going on vacation for 15 days in Italy. Are there any trained respiratory physiotherapists and what about the the French Health Insurance coverage regarding the care expenses reimbursement?
30.07.2013
Prenatal diagnosis
Hello, we are a couple desiring a child. I'm Breton [inhabitant of Brittany, a region in France] and my husband has a cousin who has CF. Is it necessary to make an ante-natal or prenatal screening or a specific follow-up? Thank you.
30.07.2013
Hygiene
2 patients aged 9 and 13 will attend the same gym but will not be in the same classes. The question is: should we pass a surface disinfectant on the beams and rigging they have used after every session? One girl is chronically colonized by Staph aureus and X maltophilia, the other by Staphylococcus aureus and Achromobacter xylososidans. None harbors pseudomonas. Thank you
29.07.2013
Life expectancy, male fertility
Today life expectancy is what age? Can we have children and being a man with the disease (without adopting or use medicine)? Thank you for you reply
29.07.2013
Crataegus
Hello, Several years ago, a study group in Gießen [Germany] showed in a small study a positive effect of Crataegutt® [crataegus] on the chloride channel in CF patients. What is the current status? Formely, I was a participant of the study and maybe I would like to repeat the tests, i.e. take one tablet of 450mg crataegus twice a day in order to find out if the effects mentioned in the study (e.g. weight gain, better stool consistency) can be observed in my case. Is this procedure acceptable? I am doing very well, almost healthy lung function, Elastase at 250, „normal life“. Many thanks.
29.07.2013
Barbecue
Hello, I wonder if it is a risk to have a barbecue in the presence of a CF child under age 14 months? Regarding to the smoke. Thank you for your reply.
29.07.2013
how serious
my daughter has G551D and 3659del c. How severe is this?
29.07.2013
CF and no reason for infertility: urgent, please!!
Hello, I am 23 years old and try to get pregnant since about 5 years, I have run through all investigatons and also laparoscopy has been done, with my husband (non-CF) everything is o.k. My hormones are super, both tubes are pervasive and free, bood test showed that I have an ovulation all the time, my uterus mucosa is buidling-up very well, my value of the anti-müller hormone is very good, my menstruation is regular, so there is until now no reason for this. 1. The sole thing I find striking is that during the first 3-4 days of my menstruation very much viscous mucus is getting out which is colored by blood, it is nearly like chewing gum and it is sometimes about 30-40mm long, can this be a hint that my cervical mucus is too viscous? And I have had an insemination, however, unfortunately it was negative, 2. or can it be that in the tubes, when an ovulation takes place, the ciliae and the fluid that transport the egg towards the uterus are thickened or stick together due to the CF, that even if always an ovulation takes place it is however not transported because everything is viscous in the tube? I can not imagine any other thing why it is not happening. Could you please give me some information on my two questions?
24.07.2013
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