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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Magnesium carbonate in climbing
- How dangerous is the "chalk" for the lungs that is used during sport climbing and that is floating in the air in the halls? Can (healthy) parents take their CF-child/-baby with them for some hours daily into the climbing halls without concerns?
- 12.06.2013
- Improvement of lung function during pregnancy
- In case of a friend of mine, her lung function improved about 13% due to a pregnancy. What kind of experience do you have with pregnant women? It lasted for about 11 months until the lung function returned to the level before pregnancy.
- 12.06.2013
- CF children
- What has to be considered in a family with two CF children? How can we live a normal life and protect our children of the exchange of bacteria?
- 12.06.2013
- Siblings of children with CF
- My firstborn child is 16 and visits the doctor just for vaccinations, as does my second born who is 10 years old. Their little brother is 3 years old and has CF. Do they need to be tested? The truth is that just the idea of testing makes me very anxious. The oldest one is in her last year at school, and I do not know if I must burden her with the testing. What should I do?
- 12.06.2013
- Sterilizing device
- My cystic fibrosis son needs to change his sterilizing device because it’s broken (we use it for sterilizing his two e-Flow kits). The old sterilizing device was too bulky for so few parts. Do you know if small sterilizing devices are commercialized (not for microwaves)?
- 12.06.2013
- Anato-pathology
- Hello, I apologize for this very dark question. If they expressed this wish or agreement during their lifetime (we always say that we can "leave our body to science?"), are dead CF patients sometimes autopsied? Not for the forensic pathology, but for advanced knowledge by examining the lungs, the gastrointestinal tract etc ... and for see exactly what happens in these affected organs? Thank you. Sincerely.
- 05.06.2013
- Alcohol
- Hello, Can a person with CF drink alcohol? And if not why? Thank you.
- 05.06.2013
- Piercing and staphylococcus
- Well, I would like to make me a lip piercing, but I'm suffering from Staphylococcus aureus. Is there a contra-indication? I don’t find informations about it on the web. Thank you.
- 05.06.2013
- Insurance in Canada
- Hello, I contact you cause I meet with many refusals by repatriation and liability insurances because of the medical questionnaire in which I included cystic fibrosis. I'm looking for insurance for 3 months and my departure approaches: still without any assurance that agrees to take care of me. Access to insurance is sine qua non for my entry into the canadian territory. I'm on the point of looking for a contract that excludes the disease, with just something covering the rest of accidents or care non-related to CF. Could you help me? Best regards
- 05.06.2013
- IRT-test elevated
- Hello, the screening of my newborn showed an increased IRT-value. Now we have to have it controlled in 2 weeks. Have now great fear that my son could suffer from CF. What is the probability? Many thanks in advance, M.
- 05.06.2013
