User login
Enter your username and password here in order to log in on the website:
Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Sterilizing device
- My cystic fibrosis son needs to change his sterilizing device because it’s broken (we use it for sterilizing his two e-Flow kits). The old sterilizing device was too bulky for so few parts. Do you know if small sterilizing devices are commercialized (not for microwaves)?
- 12.06.2013
- Anato-pathology
- Hello, I apologize for this very dark question. If they expressed this wish or agreement during their lifetime (we always say that we can "leave our body to science?"), are dead CF patients sometimes autopsied? Not for the forensic pathology, but for advanced knowledge by examining the lungs, the gastrointestinal tract etc ... and for see exactly what happens in these affected organs? Thank you. Sincerely.
- 05.06.2013
- Alcohol
- Hello, Can a person with CF drink alcohol? And if not why? Thank you.
- 05.06.2013
- Piercing and staphylococcus
- Well, I would like to make me a lip piercing, but I'm suffering from Staphylococcus aureus. Is there a contra-indication? I don’t find informations about it on the web. Thank you.
- 05.06.2013
- Insurance in Canada
- Hello, I contact you cause I meet with many refusals by repatriation and liability insurances because of the medical questionnaire in which I included cystic fibrosis. I'm looking for insurance for 3 months and my departure approaches: still without any assurance that agrees to take care of me. Access to insurance is sine qua non for my entry into the canadian territory. I'm on the point of looking for a contract that excludes the disease, with just something covering the rest of accidents or care non-related to CF. Could you help me? Best regards
- 05.06.2013
- IRT-test elevated
- Hello, the screening of my newborn showed an increased IRT-value. Now we have to have it controlled in 2 weeks. Have now great fear that my son could suffer from CF. What is the probability? Many thanks in advance, M.
- 05.06.2013
- MRI for a 5-year-old child?
- Hello, we have a 5-year-old child with CF. Our child is doing very well. Up to now, no problematic germs have been detected and the lung function is also very good. Now we have been told at the last visit of the CF center, that one would like to do in future an MRI with our child in order to detect possible changes of the lung early, if necessary also with mild anaesthesia. Now I am a bit conflicted about that. On the one hand I have worries that this procedure could be too stressful to our child (lying 20 minutes calmly in a pipe) and we may by this jeopardize the until now relaxed visitis to the CF center. Also a possible anaesthesia causes me quite a headache. On the other hand, we as parents are interested in detecting possible changes of the lung early. Adult CF patients are only shaking their head if I am telling about the idea of our CF center. An MRI would be only in question for them if there would be any health problems. But perhaps the early MRI is today an important part of the more advanced CF-therapy? What is your opinion about this? Is it necessary to already perform at this age an MRI? The CF center says that the advantage of the MRI is that it has no radiation. Until now, an ultrasound had been done yearly. However, in the MRI one would see the changes of the lung more clearly. Many thanks.
- 05.06.2013
- pseudonomas aeruginosa
- On which fruits and vegetables can Pseudomonas be found?
- 05.06.2013
- healthy carriers
- My niece has CF, the whole family has been tested and two other children are carriers. So 1 out of 7 children has CF and 2 are carriers. The other two children are compared to the non carriers often sick, so I told my sister in law who I thought was carrier of CF in her family. This was correct! Now my question is if carriers are more susceptible to bronchitis and other problems? After research I did not find anything about it and I don’t believe it is a coincidence. Best regards, H.
- 03.06.2013
- Burkholderia cepacia complex
- Hi my sons cough swab results came back saying he has burkholderia cepacia complex. I've had to send another swab but not sure why. I have read up on this infection and from what I understand I am very worried. Can you tell me what I should expect to happen and what the likelyhood of completely getting rid of this infection is, please.
- 03.06.2013
