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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
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- covid-19
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- modulator therapy
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- oxygen supplementation_therapy
- physiotherapy
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Topics
- pregnancy and CF
- I would like to know if there is a threeshold FEV1/FVC necessary before pregnancy. What are the other criteria: BMI, hemoptysis, other...
- 13.05.2013
- Bronchitol® benefit
- Bronchitol® is proposed to CF patients. Is the treatment added to inhaled hypertonic saline serum/ inhalation with salbutamole or does it subsitue the treatment? What about differences between lipromatase and CREON®?
- 13.05.2013
- chiropractor
- My granddaughter is 5 years old. Can a chiropractor help her? She is having breathing problems. She has had 3 visits in the hospital in the last 7 months with low O2 stats.
- 13.05.2013
- Xolair®/desensitization
- Hello, I am a 45 year-old woman with CF and allergic asthma (tested for trees, grases and fungi = Aspergillus). As the Symbicort® (formoterol and budesonide) is not enough anymore I have to do an additional therapy. Which of the two therapies against the allergic asthma would you recommend to me: once a month a syringye of Xolair® (substance: omalizumab) or the desensitization or both? What are the advantages / disadvantages of both treatments in the long runs? Many thanks and best regards, S.
- 13.05.2013
- ABPA and prednisone
- Dear CF-team, My 12-year-old daughter has CF with ABPA (allergic bronchopulmonary aspergillosis). For that reason she is being treated for several years yet with prednisone. This has a consequence on her growth. She is little for her age and I presume she has to take the prednisone. What are the effects in the long runs and could she leave out the prednison for a while? Or is there another medication yet? Thank you in advance for answering my question. Yours sincerely, A.
- 13.05.2013
- Whooping cough (pertussis) and CF
- Dear expert team, on the 3.3.13 I had asked a question on my severe dry cough, many thanks for the answer, Mrs. Dr. Smaczny. In the meantime I know what I have, whooping cough (pertussis) and that with 48 years! What I am astonished about is why the vaccination record is not check routinely, like a check list. I have never been vaccinated against pertussis. And honestly, I have never thought about pertussis anymore. I know, that the protection is not 100%. 2 of my 3 children had with me pertussis, one child not, even if all 3 had been vaccinated. My next question, if I had pertussis now, can I get it another time or are my antibodies sufficient? Many thanks for the answer.
- 10.05.2013
- Kalydeco® also before 6th birthday?
- My son, 4, CF, has the mutations G551D and dF508. Until now he is doing quite well concerning his general condition, even if he already had to fight strongly in his first year of life. Now I am asking myself if Kalydeco® can be prescribed for him even before his 6th birthday. Finally it is especially in CF so important, to preserve the lung from greater damage. Therefore the sooner the better.
- 10.05.2013
- Treatment of CF in Paraguay
- Is there any caring CF-center in Paraguay?
- 10.05.2013
- VX983
- Hello After VX770, VX809 and VX661, VERTEX announces a clinical trial with VX983 (in combination with Kalydeco™-VX770). This clinical trial concerns patients homozygous for deltaF508. Could you tell me more? Could you tell me if VERTEX has made the deltaF508 mutation its "workhorse" or if there are other researches on other mutations (except the G551D of course) ongoing? Thank you for answering me
- 10.05.2013
- cystic fibrosis and contact with dolphins
- Hello I am a permanent doctor of the Association "Petits Princes", an association that realizes dreams for children with chronic diseases including cystic fibrosis since the age of 25 years. Several children dream of approaching or even swim with dolphins. I wanted to know: 1 / What is the risk for children to catch a germ transmitted by dolphins? (I know that dolphins may be potential carriers of P. aeruginosa in the lung) 2 / And vice versa, what is the risk for the dolphins to come into contact with potentially lung-infected CF children? I look forward to your reply, thank you for your help.
- 10.05.2013
