Topics

Dry cough
Dear expert team, for 2 weeks I have an infection, which only consists of dry cough (healthy people without CF around me have the same infection with similar symptoms and duration). Every night I cough until after 12 o'clock. In the meantime also my larynx is affected, symptoms are pain and hoarseness. My main question is however, in how far my lung gets permanent damage? My FEV1 is at 60%. I am 47 years old. I have coughed more in these 2 weeks as otherwise in the whole year. What helps besides codein in case of dry cough?
19.04.2013
Permanent brace, loose brace or better no one at all?
Hello, I am a dentist and I am working in an orthodontist's office. We are treating at the moment a patient with CF (12-years old). Oral hygiene is not optimal but she wants absolutely to have her teeth done. Our question would be if we would do harm to the patient with a loose or permanent brace respectively which one would be better because of the germs that we have in the office in general as well as the germs which occur in the oral cavity respectively can multiply in the oral cavity during usage of a brace. Many thanks in advance
19.04.2013
Hyperechogenic bowel
I am having my first pregnancy. During the second level ultrasound a very mild hyperechogenic bowel was detected, as well as an echogenic field in the heart. The doctor said that if these findings do not recess by the 28th-30th week I must do an amniocentesis. I did the test for CF. What do you advise?
18.04.2013
Bleach
So do I understand it right that we can use "Sanytol®" instead of bleach?? French
18.04.2013
Tap water
Hello, We are often told to let the water run from the tap before touching the water. How long should we let the water run? What is the purpose of this action? Thank you.
18.04.2013
bath
When we bathe our children with cystic fibrosis at friends whose bathtub looks clean, do we have to use bleach for the bathtub before? (I know they do not use regular bleach) or should we avoid bathing them?
18.04.2013
CF and RhDNase
Hello, I have previously read the question and the response on this topic (November 2010, Pr JC Dubus). I am the grandfather of a 6 years and 10 months old CF girl followed-up in a CF centre. Whereas everything was OK and the lungs were clean on the chest X-ray, she started a RhDNase treatment on the 14th November 2011 at the age of 5.5 years which was stopped 15 days later because of an important cough exacerbation (up to 150 to 200 cough episodes per hour) responsible for a fatigue and headaches. A few time later, the X-ray did not show clean lungs, whereas before the chest X-rays were normal, and a hospitalization was necessary to treat her with intravenous antibiotics during 15 days. In the summer, the chest X-ray was anew abnormal and a second hospitalization was planned in September. Finally, this hospitalization was unnecessary, a treatment with azithromycine (3 days per week) have shown good results. And now everything is OK. I have 2 questions : 1°) Do we know other cases of young children requiring a rapid stop of RhDNase because of such adverse events? 2°) The medical staff wants to prescribe anew the RhDNase, but because of the side effects (cf the cited response of 2010) and the consecutive pulmonary consequences described above (but were they linked to RhDNase?), the parents don’t want to do that because they are afraid to experience again the previous catastrophic scenario for their child. Because of some progresses since the Pr Dubus’s response 2.5 years ago, what do you think about that? Thanks.
16.04.2013
Thoracic distension
Hello, I would like to know what is a thoracic hyperinflation. Could it be cured and what is the cause? How can we diagnose that? Thanks for your response. Sincerely
16.04.2013
use of a spa at home
Can a CF patient bathe in a spa? If yes what are the security requirements? Thank you
16.04.2013
reimbursement of care in England
My 16 year-old daughter will visit England for two weeks. According to the organizers, reimbursements with European health insurance card pertain only for health care provided by a physician but not for a physiotherapist. Could you confirm this?
16.04.2013
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