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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
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- diagnostics
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- general aspects
- genetics
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- hepatobiliary disease
- hygiene
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- microbiology
- miscellaneous
- modulator therapy
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- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
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Topics
- CF children
- Hello How can two CF children meet, aged respectively 9 months and 3 years? And what are the precautions? Thanks
- 10.04.2013
- laundry care
- Hello, we add a disinfectant in the washing machine. Is a disinfectant with ecological standard EN1040 (A Summer in Provence - Ecodoo®) sufficient or is it better to use a product like Sanytol®, EN1276 standard but dangerous for the environment? Thank you
- 10.04.2013
- fountain
- Hello, Are fountains a threat to our CF children? Sometimes when you walk in the summer, wind containing water can come to us, should we remove our children? Can our children also be at the side of fountains safely? Thank you
- 10.04.2013
- Mucolyplex®
- Hello, I heard about Mucolyplex® which would be able to decrease mucus production. Could you speak about this treatment ? Is it effective? Is it available ? Thank you
- 09.04.2013
- Double heterozygote
- I am pregnant and did a genetic testing for 95% of the CF mutations. The results were negative for any pathological CF mutation except for the polymorphism c.1408Α>G (homozygote). The father underwent the same testing and two pathological mutations were detected (G576A and R668C) and some non pathological polymorphisms. The genetic center characterized the father as double heterozygote. Is there a chance that the baby will inherit only one mutation from the father? Is there any chance that the baby will inherit both mutations from the father? If yes, will the baby be simply a carrier of two mutations and one healthy gene (from me) and will not be in danger of having CF, or will it have CF due to the two mutations?
- 09.04.2013
- Puddles
- Should we be wary of puddles? Can we let our kids jump in puddles? Can you ride through puddles with bikes, strollers ..... ? Thank you.
- 09.04.2013
- Frogs
- Hi. I would like to know if a CF child could eat frogs and snails, knowing that these animals live in water. I think that a large cooking time for snails kills germs but maybe it works much less for frogs? Thank you.
- 09.04.2013
- Bath tub with whirlpool function
- Dear expert team, due to an upcoming renovation of the bathroom I (25, CF, Pseudomonas negative) am thinking about bying a bath tub with whirlpool function. I know, that public whirlpools / jacuzzis are not recommended due to an increased risk of Pseudmonas. Is this danger relevant also for such bath tubs in the home bathroom? Many thanks and best regards, A.
- 09.04.2013
- Living donor organ transplantation of the lung
- Good morning to the expert team, I have read several years ago in the journal of the German CF-patient organization a report about a successful living donor transplantation. In how far is the living donor transplantation of the organ lung an option today? Many greetings and thank you very much.
- 09.04.2013
- Bronchitis and other
- Hello, I am the mother of a little CF girl and want to know if she has to avoid contact with persons having bronchitis or cold or gastroenteritis or may they have a mask in their presence? Thank you
- 26.03.2013
