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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
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- asthma
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- covid-19
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Topics
- Trip to England
- Is there an equivalent association for "Vaincre La Mucoviscidose" (the french CF association) in England?
- 16.04.2013
- Thermal bath
- Hello, I have a question concerning thermal baths. How is it there with humid-germs, especially the Pseudmonas aeruginosa? Has one actually to expect such germs there due to the salt content of the water? On the other hand, the water is very warm, which are good conditions for the germs. Many thanks for your answer.
- 16.04.2013
- Henoch-Schoenlein purpura as reaction to Pulmozyme®?
- Dear experts, our daughter, 9 years old, is in a good general condition. However, she just had a common cold. Her immune system reacted normally, the fever disappeared after one day, then for 2 days increased temperature. She also had a strong cough in the upper area, no bronchitis, the lungs were free on auscultation. The treating hospital already recommended before the infection that our daugther should inhale Pulmozyme® (rh-DNAse). We started the therapy 3 days after disappearance of the fever. First pains in the joints already occured on the evening after. We inhaled for 3 more times. After the second time the red hematoma ressembling spots on the feet appeared and in addition very hard pain in the upper legs and feet. Then we went to the clinic and Henoch-Schoenlein purpura was diagnosed. We were told to go on with inhalation of Pulmozyme®. Is this recommendable? Could it not be that the purpura has been provoked by Pulmozyme®? Thanks for the answers.
- 16.04.2013
- Belly
- I have a question, I (16) have per se already a big belly (respectively a bit a big one) due to CF and diabetes. However, now it gets worse, I have quite much air in it.... as it turs out to be worse and worse with the belly (thus bigger and all) this bothers me a lot...can one do something about this?
- 16.04.2013
- Insurances and CF
- Can you obtain a life insurance in Holland if you have CF?
- 10.04.2013
- Diagnosis
- Hello, I am 39 years old and have 10 years of an undiagnosed complaint that resembles the symptoms of CF. I discussed this with my doctor, who declined this diagnosis. I am smoking. After seeing a tobacco specialist, an ENT, a chest X-ray was made and a CT scan of the sinuses .. still no diagnosis except allergic sensitivity. I want to know who I have to consult for a reliable diagnosis and for considering treatment.
- 10.04.2013
- CF children
- Hello How can two CF children meet, aged respectively 9 months and 3 years? And what are the precautions? Thanks
- 10.04.2013
- laundry care
- Hello, we add a disinfectant in the washing machine. Is a disinfectant with ecological standard EN1040 (A Summer in Provence - Ecodoo®) sufficient or is it better to use a product like Sanytol®, EN1276 standard but dangerous for the environment? Thank you
- 10.04.2013
- fountain
- Hello, Are fountains a threat to our CF children? Sometimes when you walk in the summer, wind containing water can come to us, should we remove our children? Can our children also be at the side of fountains safely? Thank you
- 10.04.2013
- Mucolyplex®
- Hello, I heard about Mucolyplex® which would be able to decrease mucus production. Could you speak about this treatment ? Is it effective? Is it available ? Thank you
- 09.04.2013
