Topics

antibiotics
Hello, At the request of our CF-center, our 4 year old daughter is constantly on antibiotics all winter (alternating 15 days josamycin (macrolide) / cefpodoxim (cephalosporine) October to April), regardless of her state of health, particularly when "okay." We have no doubt of the benefit of this procedure but we would like to understand a little better why antibiotics are used "preventive" in the context of cystic fibrosis. Have studies have reported a concrete benefit for the field of infections? Also, what are the consequences of taking antibiotics over several months for the body of our daughter and future resistance to bacteria? For example, we had to stop taking amoxicillin plus clavulanic acid, that she tolerated well taken occasionally before, because after a few weeks, severe gastrointestinal symptoms appeared (one treatment is the intake of saccharomyces cerevisiae which is also associated daily). Thank you in advance for your response and we congratulate you for all the information available on the site.
14.03.2013
Common ivy
Hello, I have read that «common ivy» is beneficial for the treatment of bronchial inflammation, chronic bronchitis and that it favours the elimination of mucus. Can you tell me if research has been done concerning the efficacy of «common ivy» in cystic fibrosis ? Thank you in advance for your answer.
14.03.2013
Abdominal pain
Hello, My 6-year-old daughter with cystic fibrosis, complains of very strong abdominal pain. Nothing to x-ray, nothing in the stools and pancreatic enzyme dose has been changed several times .. How con one relieve it??? Thank you because we don’t know what to do.
14.03.2013
Cervical mucus impenetrable???
Hello, Some time ago I wrote that I have been trying to become pregnant for 4,5 years (I am 23 years old, 50kg, 1.60m, lung function 70-78%). When I was a baby I had an abdominal surgery done (intestinal occlusion) which caused concretions; these were removed about one year ago. However, it became obvious that the concretions were not the reason why I have not become pregnant for 4,5 years. Everything is functioning 100% and both tubes are permeable and nevertheless I do not become pregnant. Is it possible that the cervical mucus is so impenetrable that one cannot become pregnant for 4,5 years? Would medication or insemination be of help? [The rest of the question was only relevant for the German platform where the question was originally asked]
14.03.2013
holiday
My daughter has a friend with CF. They are going on vaccation to Barcelona. What should her friend do to organize that flight? R.L.
14.03.2013
Tolerability of Cayston®
Hello, I have CF and asthma and therefore I inhale Cayston® (Aztreonam lysine) every second month (intolerability of Tobi® (Tobramycin inhalation solution) and Colistin)). I tolerate Cayston® better but only if I dissolve it with 0.9% NaCl and not with 0.17% sodium chloride solution enclosed by the company (cough and burning during inhalation, increased constriction). Is the effect garantueed even so? The amount of sputum decreases clearly in the third and fourth week.
14.03.2013
Diagnosis
Hello, I have a big problem, my son, who is 6 years old, was born in the 27th week of gestation. He had problems with bowel movments from the first day on and was not able to evacuate his meconium. On the third day after his birth the doctors wrote down the following: "Extremely dilated bowel loops, including the stomach. Differential diagnosis paralysis of the bowl, a volvulus as well as a meconium ileus cannot be excluded. In the course of time accentuation of loops with thickening of the wall in the lower abdomen respectively fluid collection in the right middle abdomen, no evidence of NEC (necrotizing enterocolitis) or stenosis." Furthermore, they wrote about his lungs: "Pneumothorax of the right apex of the lung with beginning mediastinal shift to the left side. Badly aired lungs on both sides otherwise without pathological findings, after drainage complete regression." At the age of 3 years he had an anal prolaps. Up to now he is not able to evacuate stool without enema or drugs. He has had several colds, however not very striking. He his very small and tiny for his age, so that there has also been the suspicion of hyposomia. Now we have come over three circuits to the CF-center, there a sweat test has been performed three times, all three test results were borderline. Then, a genetic testing has been performed, that tested for the 30 most frequent mutations. This test has been negative. The doctor in charge said that according to his opinion, the investigation is finished with that. Now I stand here, my son is still coughing until he vomits, is not able to evacuate his stool and does not thrive. Now my question is, what can I do? It cannot be normal that one coughs like this and cannot go to the toilet? The sweat test results have all three been borderline, the "small" genetic test however negative. Which investigations can I do further? What do you think about the medical history of my son? I thank you very much for every answer. Best regards, J.
14.03.2013
Pseudomonas
If I touch the hand or foot of a person with pseudomonas, is there a chance I could get infected or carry the bacteria to a third person?
05.03.2013
Life expectancy
What is the life expectancy of a girl born in 1994?
05.03.2013
chest congestion and frequency of physiotherapy sessions
Our son, aged 5 has always attended three physiotherapy sessions a week without showing any respiratory symptoms until now (little cough, no sputum). The therapist has told us that the sessions are becoming productive and offered to step up to daily sessions. Is there any way to know if this congestion will be permanent (meaning the illness evolved and this situation will be definitive) and/or occasional and therefore require a temporary intensification of the drainage?
05.03.2013
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