Topics

Risk of transmission (germs) from severly ill grandmother
Dear expert team, currently I am very confused asking myself how I can manage the contact between my child (CF, 4 years, Pseudomonas negative, from time to time colonized with Staph. aureus and Haemophilus influenza) and the grandmother. My mother has end-stage carcinosis. Until a short time ago she went to the hospital (in-patient and out-patient) several times. Currently an external bridge nurse is taking care of her at home. Is it possible that she is a "transmitter"? Is there a certain risk of transmission for my son from his grandmother? Especially what MRSA is concerned? Can we do anything against it? Many thanks for answering.
24.01.2013
information
My girlfriend has CF. She doesn't do her treaments. What is her risk?
24.01.2013
Increased liver enzmyes
Dear expert team, at a control of a blood sample, increased liver enzymes have been detected. SGOT/AST in the serum was increased by a factor of 2 of the laboratory reference range, SGPT/ALT in the serum was increased by a factor of 3 of the laboratory reference range, ALP in the serum was increased by a factor of 2 of the laboratory reference range, GGT in the serum was increased by a factor of 4 of the laboratory reference range. Ultrasound investigation of the upper abdominal region was without pathological finding in April 2012, except for a suspicion of steatosis grade I. After 3 weeks the values were controlled. ALT/AST and GGT are decreasing but still elevated. The ALP slightly further increased. I am CF patient, I take azithromycin for 2 days as a long-term therapy and had now in november additionally a therapy with moxifloxacin for 14 days. Due to an increased blood chloesterol level I am taking 10mg ezetimib in the mornings and 80mg fluvastatin in the evenings. Could it also be possible that the increased liver enzymes have a correlation with this? Thank you very much for your work and that you run this website. S.
24.01.2013
Hygiene measures
In how far should hygiene measures differentiate concerning the private setting, day seminars of the association, longer recreational stays of the association, climate stays of the association and convalescent care, visits at the CF-center and hospital stays taking into account the very different risk situtaions and different state of study data?
24.01.2013
Bicarbonate preparation for inhalation
Dear expert team, Is there a ready-to-use preparation for inhalation with bicarbonate on the market? [The question was originally asked on the German platform of the expert advice] I would like to inhale it with a jet nebuliser. If there is no such preparation on the market can I just add a little bit of sodium bicarbonate from the drugstore to a 0,9% NaCl ampulla? And if yes, how much do I have to add? My intention is to increase the Ph value in the airways. Many thanks for your answers! N.
24.01.2013
CF & heterozygous?
Dear reader, After reading your articles on CF (thank you for that) I still have one question. I was diagnosed with F508del and R117H, heterozygous, polymorphism IVS8-Tn: 7T/9T. I am confused about the part “homozygous and heterozygous” and in what grade it can cause illness. I understand that heterozygous means in my case that 1 gene is found with 2 mutations. According to the articles I have been reading, it means that I have no risk on illness. However, I have no vas deferens and moreover my sweat is very salty. In other words: that seems to me real disease. I started with my partner an IVF treatment but I have doubts. My partner has been tested and was considered “clean”. We do not want to have children with a serious disease. So my question is: knowing this background, is there a chance that our children will have a severe kind of this disease, and if yes, how big is that chance?
24.01.2013
Sweat test 51 - Continued
Dr Doudounakis, Following your past suggestion the genetic testing for the 95% of mutations was concluded. The mutation G576A was detected (paternal), as well polymorphisms T854T, I148T and R668C. I remind you that the first sweat test was 51 and the second one 49. The IRT results at the time of birth ware negative (20). The child continues to eat with great difficulty, but we manage to have all the meals. For the last five months her height and weight are the same. She does not have any respiratory symptoms apart from 2 occasional infections. I am very worried. Is it possible for a carrier of a CF mutation to have borderline sweat test results?
24.01.2013
Mould in nuts
Dear experts, Is it possible that swallowing mouldy tasting nuts leads to an allergic reaction in the lungs of a CF patient (who also had ABPA (allergic bronchopulmonary aspergillosis) before)? Thanks for your answer.
22.01.2013
School Canteen
Hello, My daughter will start kindergarten in September. She has Cystic Fibrosis. I work and my daughter will go to the canteen and then I wondered if the canteen meals were adequate (Calories, fats and salt). If not, are packed lunches as those that already exist for children with allergy, a possibility ? What are the steps? Thank you for this web site and all the work you doing. Best regards.
22.01.2013
Hygiene
I have heard once, that study data on the question of infection with Pseudmonas in the household (e.g. via wet tooth brushes, flowerpots) is sparse and no statements on the risk of an infection can be made. In the field of hospital stays however, there would be much more studies on the risk of infection. Therefore, hygienic measures in the private field should e.g. differ substantially from those at a hospital stay. Do you agree on this?
22.01.2013
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