Topics

Cat (outside during the day)
Hello, my son's (CF, 14 years old, colonized with encapsulated PSA, FEV 90%) grandparents would like to "adopt" a stray cat who is very healthy according to the vet. The cat is outside during the day and sleeps in the house. No litter box. Is this a reasonable plan with a CF child and, if so, which hygiene measures are required? Are there any particular vaccinations apart from the usual ones necessary for the cat? Can our child sit in the same chair as the cat? Is a litter box in the house off-limits? What about stroking the cat? Many thanks for your advice.
14.01.2013
pseudomonas
I read one question posted here and it describes the condition of my child to the letter. My child is negative in all pharyngeal tests, except the summer ones, july +, august - (with treatment), with treatment negative tests (july-february), but in july positive. Does that mean permanent pseudomonas and has the lung damage already begun? If I understood correctly, do these children have more frequent colonization as they grow up, although they are more responsible than a 2.5=3 years old child?
14.01.2013
humidifier
I would wet my interior to maintain a proper Hydrometric rate and of course do not use standing water. What do you recommend? a dad
14.01.2013
ESBL – how easily transmittable?
Dear expert team, Many thanks for hinting to the previous questions on ESBL. I already read their answers, but would appreciate it if my question was answered nevertheless. I am particularly interested to know how easily ESBL is transmittable (to our daughter’s grandparents, who are at the great-grandfather’s every day) and whether a test makes sense. Many thanks. [Note: the following question was asked by the same questioner earlier: Dear expert team, Our daughter’s (4 years old, CF) great-grandfather has been diagnosed with ESBL about a year ago. We have stopped being in touch with the great-grandfather since knowing about the germ. Now, however, our daughter’s grandmother visits the great-grandfather in his retirement home daily. I am wondering how likely it is that she as well as her husband (who has COPD) have caught ESBL. Would it make sense for both of them to get tested (if so, how?), especially given that our daughter has CF. I feel uncomfortable with this whole ESBL issue whenever the family is getting together; we have therefore been reducing contact significantly for several weeks. Also, in the retirement home, no whole-body and mouth protection is done anymore with the great-grandfather; instead, one only points to hand disinfection and he can also move around freely in the home. Isn’t that a bit careless?]
14.01.2013
Possibility of carrying 2 mutations
I am pregnant and I was tested for 85% of the greek CF mutations of the CFTR gene. I was found to be a carrier of the Ν1303Κ mutation. Is it possible for me to carry another mutation of the CFTR? Would that mean that I need to do a more complete genetic testing, one that covers a bigger percentage of the mutations?
14.01.2013
Elastase test
I would like to ask about the elastese test. Must the stool sample be of the same morning as the test, or can it be of the night before? Is the test necessary for social security?
14.01.2013
Sweat test and Seretide®
I would like to ask if the inhalation therapy with salmeterol (long-lasting beta-memetics) and fluticasone in Seretide® can affect the result of the sweat test (ours was 26).
14.01.2013
N-acetylcysteine (Mucomyst®)
Why my 16-year-old CF boy has never received a treatment with N-acetylcysteine? Is this drug not indicated in such a disease? My daughter suffering from a viral bronchitis has been treated with N-acetylcysteine. Thanks for your response.
14.01.2013
Mycobacterium simiae
My daughter has been receiving ceftazidime and amikacin, followed by meropenem and amikacin and clarythromycin 500 mg bid. Because of gastrointestinal side effects, the dose of clarythromycin was recently reduced but my daughter had to stop this treatment due to these side effects. Is there another oral treatment for M. simiae?
14.01.2013
Elastase
My pediatrician requested a measure of elastase for my 6 year old daughter who for four years now has a chronic cough and sputum, sometimes with fever all winter despite the antibiotics, nasal sprays that bring no improvement. However, the summer, she's fine. Chest radiography and sinuses are normal. Is elastase used only to diagnose cystic fibrosis? Thank you for your answer.
14.01.2013
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