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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- fish bowl
- Does a fish bowl contain stagnant water? Or can there be other dangerous bacteria for a child with Cf? Can the child help changing the fishbowl water?
- 11.12.2012
- pond water
- Can a child with CF play in a pond (fishing, sailing,..) or accidentally fall in the water without additional risks?
- 11.12.2012
- cystic fibosis
- what is the features of cystic fibosis
- 22.11.2012
- Mutations
- Could you give me some information about these 2 mutations, G551D associated with Q1476X : which class do they belong to, which respiratory or digestive problems can they cause, severity of the disease, even knowing that the disease is not similar between subjects. Thank you in advance for your response.
- 22.11.2012
- Respiratory function - thoracic distension
- Here is my question : I recently realized pulmonary function tests which showed increased residual volume and total lung capacity (RV=180% et TLC= 132%). I have never smoked but have had quite frequently a dry cough without expectoration for many years. Could you help me understand these results. How can a so big thoracic distension be explained? Thank you for your answer. Have a nice day.
- 20.11.2012
- Pregnant with CF, how is the child born
- Dear expert team, I am pregnant and have CF, and would now like to know how the birth of the child will happen. Will it be born in the usual way or by cesarian section? What would be the gentler way for the mother? Many thanks in advance and kind regards.
- 20.11.2012
- Genetics, diagnosis and therapy option
- Can the new drugs (Vertex) only used with F508del homozygous or would that also be possible with F508del and IVS8T5? Can one tell exactly from the genes or through a test (e.g. blood) what our son's "protein problem" is? Many thanks.
- 20.11.2012
- CYSTIC FIBROSIS
- What is new in the field of gene therapy research except of routine treatment with antibiotics, enzymes and lung transplantation?
- 20.11.2012
- Heterozygous mutation
- Hi, I have a daughter that was diagnosed with DeltaI507 from mother's side and 3272-26A>G from fathers side, she has never had an symptoms and is perfectly healthy at 7 years old. Nevertheless, I am pregnant and would like to know if you have any record of this combination and what the expression is like.
- 20.11.2012
- When to start school ?
- Hello, In case is it possible, having the idea to spare infections, what do you think about the balance benefit/ risk to delay the beginning of school for a CF child when it is 4? Thank you
- 15.11.2012
