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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
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- covid-19
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- hepatobiliary disease
- hygiene
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- microbiology
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- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
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Topics
- Respiratory function - thoracic distension
- Here is my question : I recently realized pulmonary function tests which showed increased residual volume and total lung capacity (RV=180% et TLC= 132%). I have never smoked but have had quite frequently a dry cough without expectoration for many years. Could you help me understand these results. How can a so big thoracic distension be explained? Thank you for your answer. Have a nice day.
- 20.11.2012
- Pregnant with CF, how is the child born
- Dear expert team, I am pregnant and have CF, and would now like to know how the birth of the child will happen. Will it be born in the usual way or by cesarian section? What would be the gentler way for the mother? Many thanks in advance and kind regards.
- 20.11.2012
- Genetics, diagnosis and therapy option
- Can the new drugs (Vertex) only used with F508del homozygous or would that also be possible with F508del and IVS8T5? Can one tell exactly from the genes or through a test (e.g. blood) what our son's "protein problem" is? Many thanks.
- 20.11.2012
- CYSTIC FIBROSIS
- What is new in the field of gene therapy research except of routine treatment with antibiotics, enzymes and lung transplantation?
- 20.11.2012
- Heterozygous mutation
- Hi, I have a daughter that was diagnosed with DeltaI507 from mother's side and 3272-26A>G from fathers side, she has never had an symptoms and is perfectly healthy at 7 years old. Nevertheless, I am pregnant and would like to know if you have any record of this combination and what the expression is like.
- 20.11.2012
- When to start school ?
- Hello, In case is it possible, having the idea to spare infections, what do you think about the balance benefit/ risk to delay the beginning of school for a CF child when it is 4? Thank you
- 15.11.2012
- normal school
- We have learned after the discovery of significant bronchiectasis that our 8 year old son has cystic fibrosis. We find this news hard and I ask myself a lot of questions, especially if he can continue his schooling normally by knowing he eats in the canteen and stays at school after the normal classes to study until the evening every day, because we work both, his dad and myself. There are no drugs to take at lunch, only in the morning and evening. Thank you very much for your answer.
- 15.11.2012
- Cave
- Hello, Are there recommandations against visiting natural caves for children with cystic fibrosis? I think especially about the Pseudomonas aeruginosa germ. Otherwise what precautions should we take (wearing a mask) ... thank you
- 15.11.2012
- Perfume (fragance) diffusers
- Hello, Do you think that synthetic perfume (fragance) diffusers may be dangerous for lungs? Can we use them when our 2 years old girl is in the same location? Best regards. Thanks.
- 15.11.2012
- Lung function
- How to improve my child's lung functions (from 55% at present) and slow the further damage?
- 15.11.2012
