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Tags
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- F1052V and F508del
- We are expectant and near 14 weeks gestation. My wife carries F508del and I carry F1052V. The results of our CVS test revealed that the baby inherited both faulty genes. We would like to know what to expect in clinical manifestations? What treatments might be available? Should we bank the cord blood? But mainly, what degree of CF might be presented. Thank you in advance.
- 14.11.2012
- liver disease
- Is liver disease in cystic fibrosis a biliary or thrombotic disorder?
- 14.11.2012
- Lungwort
- Is it correct that lungwort or marshmallow has positive effects on phlegm in case of cf?
- 14.11.2012
- resistance
- Hello I would like to know when resistance to antibiotics occurs. Is it smart to change regularly the maintenance dose? What are the consequences of antibiotic resistance? Are there enough effective antibiotic treatments? Thank you
- 14.11.2012
- SPLUNC1 protein
- Hello Could you give some information concerning SPLUNC1 and its effects in cystic fibrosis? Do we know well this protein or is it only the beginning of the research? Are there studies planned ? Thanks for your answer.
- 14.11.2012
- Nonsense mutations
- Hello, I am a mother of a child who has a nonsense mutation and I would like to know whether, apart from Ataluren, there were other current researchs on these mutations. Thank you in advance.
- 13.11.2012
- Health and wellness
- What are ways to make life easier for patients with cystic fibrosis?
- 13.11.2012
- Protective isolation or contact isolation ?
- Hello, Currently studying second year of nursing school, I have completed an internship in pediatrics where patients with cystic fibrosis were present due to exacerbation. I noticed that they were isolated and I can not find on any official website (HAS for example) what the kind of isolation is: is it a protective isolation or a contact isolation? It was a contact isolation when the patient had antibiotic-resistant bacteria. If the patient does not have MRSA, is it a contact isolation anyway? Why?
- 13.11.2012
- Pseudomonas vaccine
- Hello, I am the mother of a seven and half months old CF baby. Today my baby is well. I have heard about clinical trials for Pseudomonas vaccine. What is the development stage? What are the results about these trials? In advance thank.
- 12.11.2012
- Combination therapy: Kalydeco+VX809
- Following recent results presented at the NACFC in Orlando, it seems that the association Kalydeco+VX809 is promising. Will the drug be commercially available in 2015/2016?
- 12.11.2012
